Cause2Cure

Cause2Cure

www.hlhsconsortium.org
This podcast aims to capture the insiders view of the collaborative efforts to discover, develop, and deliver a CURE for single ventricle congenital heart disease such as HLHS. This journey is told with the patient’s perspective guiding the scientists, engineers, product development teams, and the physicians and surgeons that work daily to produce new solutions. Complex congenital heart disease (CHD) is going to be transformed by a team-of-teams collaborative approach that is centered on the unmet needs of the patient. Join the team!


Meagan Houpt Shares All Sides of Her HLHS Story
Jul 23 • 44 min
The rebel stage, anxiety, being comfortable with your cardiologist and the importance of finding your crew. Adult HLHSer, Meagan Houpt and I talk about these ups and downs + many more topics. Meagan is an honest and real role model in the CHD community.…
Daniel’s 550-mile Hike with HLHS
Jun 24 • 47 min
My conversation with Daniel is filled with adventure and inspiration. Daniel describes his 550-mile walk through Spain and living in another country with HLHS. We end today’s episode with practical and powerful questions about genetics, research, and the…
Kelly DiMaggio on Mental Health, Exercise and Finding Your Soulmate
Jun 10 • 48 min
Kelly is an adult with half a heart, living life to the fullest. On today’s episode, Kelly shares her thoughts on the power of exercise, how adults with HLHS have pushed the comfort level of many physicians and what changes she wants to see in the CHD…
Jessica Lindberg: Give Yourself Grace
Jun 3 • 57 min
On today’s episode, I have a very authentic and transparent conversation with Jessica Lindberg. Jessica is an entrepreneur, a heart advocate, a writer/speaker and a proud mother of four boys. Her empowering message will leave you feeling HEART STRONG. To…
Greg Olsen: Find Your Role
May 1 • 61 min
NFL tight end, Greg Olsen and his family have found their role in the CHD community. Today, we talk about the Olsen family’s heart journey, what Receptions for Research: The Greg Olsen Foundation has accomplished in Charlotte, NC and our collective…
Bella and Erin Borkowski
Apr 17 • 40 min
I had so much fun recording today’s episode with Bella and Erin. After the first couple minutes, you will understand why! Erin and I talk about how Bella has inspired the Borkowski family and their community. We are grateful to be connected with local…
Part 2: Meg (Roswick) Didier
Apr 10 • 27 min
On today’s episode, Meg (Roswick) Didier and I discuss the next set of milestones that Meg has tackled and is currently encountering: a career, marriage and starting a family. Meg also asks me a very important question: what is the HLHS Program doing for…
Part 1: Meg (Roswick) Didier
Apr 4 • 26 min
Meg (Roswick) Didier has become a role model to many in the heart world. In this two part series, Meg and I will discuss what it was like to be one of the first HLHSers to tackle many of life’s milestones. Today, we cover her diagnosis, growing up…
Gabrielle Wanek’s Advice to CHD Families: Trust Your Kids!
Mar 20 • 22 min
Today I have the privilege of hosting a very important guest, Gabrielle Wanek. Gabrielle is not only the inspiration for the Wanek Family Program for HLHS, but an inspiration for all young adults and families affected by CHD. Her stories and advice will…
My Interpretation of “Where Focus Goes, Energy Flows”
Mar 13 • 7 min
Today’s short episode covers the big and bold things happening at the HLHS Program thanks to Todd and Karen Wanek’s strategic investments and our cross functional, purpose-built team. This team has an intense focus on the needs of the patients, continuous…
Dr. Frank Cetta’s Opinions on Second Opinions
Mar 6 • 14 min
On today’s episode, Dr. Frank Cetta of Mayo Clinic will discuss his thoughts about second opinions. We will be asking many physicians about their thoughts on this very important topic. I am excited to have Dr. Cetta kick off the series; the analogy he…
A Heart Dad’s Advice: Be Present
Feb 28 • 23 min
Marc Stoll is my mentor, friend, a member of the external advisory board for the HLHS Program and most importantly, he is the father of a heart champion-Nathaniel. Marc has brought intense insight and focus to the HLHS Program. Now, he shares his…
CHOP 2020: Opening Plenary Session
Feb 20 • 18 min
Did you know that Fontan circulation has been solved for over 100 million years? My TED style talk at CHOP 2020 analyzes the species that has figured it out + shares HLHS Consortium research updates. Follow along with the slides posted on…
Ava the Superhero is Back for an Interview with Mayo Clinic Radio
Feb 8 • 13 min
I had the privilege of interviewing alongside my favorite superhero, Ava! Both Ava and her brother, Miles, have HLHS and are paving the way for other kiddos with CHD. Tune in to learn more about Ava’s superpowers.
Pioneering Patient Perspective with Gene Lunger- Diagnosis and Treatment of Congenital Heart Disease
Feb 6 • 18 min
Gene Lunger takes me back to the 60’s with his emotional moments when his family learned about his diagnosis and his first memories of CHD. We honor the pioneers of innovation who created the heart-lung machine and look forward to future of biomedical…
Umbilical Cord Blood Collection 101 with Staci Strand
Feb 4 • 33 min
Staci Strand, a heart mom, and I walk through questions her family had about umbilical cord blood collection. When you receive the overwhelming news that your baby has been diagnosed with HLHS, there will be an information overload. I created this episode…
The Todd and Karen Wanek Family Program for HLHS Celebrates Ten Years
Feb 3 • 18 min
This episode reflects on the Program’s history and highlights from the last ten years, provides a current update and shares what we plan to accomplish in the future. To have our infrastructure and ability to do important work for CHD patients is a real…
Tim Nelson, MD/PhD interviews a superhero after having a surprise visit to our HLHS headquarters.
Nov 17, 2019 • 6 min
Ava and her younger brother Miles both have HLHS. Ava was the first baby to have umbilical cord blood collected and her family have been pioneers on many fronts. The HLHS program is grateful for kiddos like this. Just listen.