Connecting ALS

Connecting ALS

www.connectingals.org
Connecting ALS is a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter.


“Managing COVID-19 and Social Distancing While Living With ALS…”
May 28 • 17 min
Welcome to Connecting ALS. This week we talk to three families who share their experiences living with ALS during the COVID-19 pandemic.
“The Future of ALS Clinical Trials…”
May 21 • 20 min
Welcome to Connecting ALS. On this episode we talk to Dr. Merit Cudkowicz about the impact of COVID-19 on conducting clinical trials.
“Helping Kids Affected by ALS…”
May 14 • 29 min
Welcome to Connecting ALS. This week we look at the devastating impact ALS has on kids and the ways we can help.
“The Impact of ALS on Families, Mother’s Day, and Creating New Traditions…”
May 7 • 19 min
Welcome to Connecting ALS. For our Mother’s Day episode we talk with one family about how they’re creating new traditions while living with ALS.
“Helping Students Overcome the Devastating Financial Impact of ALS…”
Apr 30 • 31 min
Welcome to Connecting ALS. This week we talk about the Jane Calmes ALS Scholarship Fund, which is currently accepting applications from people affected by ALS who wish to pursue college degrees or vocational certificates.
Call for Mother’s Day Stories
Apr 28 • 1 min
Mother’s Day will be here before you know it and we’ve been thinking it would be great to share some amazing stories of moms in a special episode.
“Creative Volunteering During COVID-19 and Long-Term Trends…”
Apr 23 • 28 min
Welcome to Connecting ALS. This week we celebrate National Volunteer Week by exploring some of the creative ways volunteers are continuing to serve the community during COVID-19.
“Bioethics and Hospital Care During the COVID-19 Pandemic …”
Apr 16 • 30 min
Welcome to Connecting ALS. In this episode we look into health care scarcity and rationing during the COVID-19 pandemic and what people living with ALS can do to prepare.
“Collaboration in ALS Research and the Implications of COVID-19 …”
Apr 9 • 17 min
Welcome to Connecting ALS. In this episode we are focusing on collaboration in ALS research and implications of the COVID-19 pandemic.
“Telehealth and the Evolution of Clinical Care During COVID-19 …”
Apr 2 • 23 min
Welcome to Connecting ALS. In this episode we are focusing on the evolution of clinical care during the COVID-19 pandemic and how telehealth has quickly moved from an ideal to a reality.
BONUS EPISODE: “Staying Focused Through COVID-19…”
Mar 27 • 10 min
A quick check-in with Calaneet Balas to discuss how The ALS Association is staying focused on mission delivery through COVID-19.
“How the ALS Community Continues to Advocate During the COVID-19 Pandemic…”
Mar 26 • 23 min
Welcome to Connecting ALS. In this episode we are focusing on advocacy during the COVID-19 pandemic and how you can influence legislation from home.
“What the ALS Community Needs to Know Right Now About COVID-19 … “
Mar 19 • 37 min
Welcome to Connecting ALS. In this episode we are focusing entirely on COVID-19 and what you need to know.
“Helping People Live Longer and Stronger With ALS…”
Mar 12 • 17 min
Welcome to Connecting ALS, your weekly podcast from The ALS Association. This episode centers on helping people living with ALS and their caregivers live longer, better lives.
“ALS Research Now and Into the Future…”
Mar 5 • 26 min
Welcome to Connecting ALS, what is now a weekly podcast produced by The ALS Association’s national office and the Association’s Minnesota/North Dakota/South Dakota Chapter.
“Parenting While Living With ALS and A Moment With Don and David…”
Feb 13 • 38 min
Welcome to episode 10 of Connecting ALS.
Bonus Episode: “A Moment With Sarah”
Jan 16 • 3 min
In this bonus episode we continue our ongoing ‘A Moment With…’ series.
“ALS Research and the Therapy Development Process…”
Jan 9 • 40 min
Welcome to episode nine of Connecting ALS.
In Memoriam: Pete Frates
Dec 13, 2019 • 5 min
In this bonus episode we want to call attention to a loss that the ALS community and really the world suffered this week when Pete Frates died at the age of 34.
“Remembering Pete Frates, Preparing for the Holidays, and A Moment With Jan…”
Dec 12, 2019 • 32 min
Welcome to episode eight of Connecting ALS.
Bonus Episode: “A Moment With John”
Dec 3, 2019 • 5 min
In this bonus episode we are sharing November’s story “A Moment With John” for those who may have missed it.
“National Family Caregivers Month and A Moment With John…”
Nov 14, 2019 • 65 min
Welcome to episode seven of Connecting ALS.
Bonus Episode: Panel Discussion on Caregiving
Nov 8, 2019 • 51 min
In this bonus episode we share a panel discussion on caregiving that we hosted in the Connectivity Center for our monthly support group as part of National Caregivers Month.
“ALSUntangled and a Listening Tour…”
Oct 10, 2019 • 54 min
Welcome to episode six of Connecting ALS.
“Association Insight and Platform Trials…”
Sep 12, 2019 • 47 min
Welcome to episode five of Connecting ALS.
“Feeding tubes and the Mind Body Connection…”
Aug 9, 2019 • 58 min
Welcome to episode four of Connecting ALS.
“Palliative care, a Twins legend, and advocacy in D.C….”
Jul 11, 2019 • 56 min
Welcome to episode three of Connecting ALS.
“Home health, voice banking, and clinical care…”
Jun 13, 2019 • 71 min
Welcome to episode two of Connecting ALS.
Advocacy Alert: Changes to CMS
May 23, 2019 • 5 min
We’re dropping a special bonus episode of the pod to address a developing issue that requires all of us to take action!
“For our debut episode…”
May 9, 2019 • 71 min
Welcome, everyone, to the debut episode of Connecting ALS.
“This is Connecting ALS”
Apr 24, 2019 • 1 min
Welcome to a new podcast from the Minnesota, North Dakota, South Dakota Chapter of The ALS Association.