This Caregiver Life

This Caregiver Life

www.thiscaregiverlife.com
Hosts Jennifer Mackinday & Mary Hahn Ward are long-time caregivers. “This Caregiver Life” podcast explores the journey of caregivers from all walks of life. Whether you are a caregiver, clinician, or community member supporting caregivers, you’ll connect with our stories, resources, and insight. We share an unfiltered look into the frontlines of caregiving, of #thiscaregiverlife. p.s. We are excited to share we have recently been rated a top ten caregiver podcast! Wow!


E46: Hope After Stroke with Tsgoyna Tanzman
Jul 8 • 40 min
In this episode, Mar & Jenn are joined by Speech-Language Pathologist and Life Coach Tsgoyna Tanzman. She’s helped thousands of people transition after stroke and brain injury to the next stages of their lives. Tsgoyna is an expert at helping people find…
E45: Thrive With Your Tribe
Jul 8 • 28 min
In this episode, Mar and Jenn are joined by Raquel Derrick, Founder of Family Operating Base in the last of our 4-part collaboration. We discuss the complex issues of caregiving we’ve explored in this series and the takeaways we hope listeners can use in…
E44: Offering Yourself Grace
Jul 7 • 37 min
In this episode, Mar and Jenn are joined by Shawn Moore, LMSW, Executive Director and Founder of Caregivers on the Homefront and Raquel Derrick, Founder of Family Operating Base. We discuss the challenges of caring for yourself while caring for a loved…
E43: Caregiver Career Conversation with Larry Nisenson
Jun 20 • 43 min
Mar and Jenn are joined by Larry Niesenson, Genworth Financial Chief Commercial Officer, the parent company of CareScout® Caregiver Support Services. A caregiver for his father who was diagnosed with a brain tumor, Larry is passionate about solving the…
E42: Honoring Lisa - End ALS
Jun 12 • 37 min
Mar’s guest today, Michael Bullen, was a caregiver to his spouse, Lisa, who had an aggressive form of ALS. They were married for twenty-five years. The last fourteen months of their marriage they battled an aggressive form of ALS together. Michael is…
E41: Finding Our Way After Loss with Wounded Warrior Project’s Dan Miller
Jun 10 • 58 min
Mar and Jenn are joined by Dan Miller, Wounded Warrior Project Warriors Speak spokesperson, and Raquel Derrick, Founder of Family Operating Base. In this episode, we explore the complexities of grief and talk about the differences between ambiguous and…
E40: Adapting to a Virtual Life
Jun 7 • 63 min
This Caregiver Life is excited to collaborate with Family Operating Base to produce a 4-episode special highlighting caregiver best practices that anyone can learn from. Each episode will feature Family Operating Base Founder Raquel Derrick along with a…
Bonus Episode: After Disability Continuing On
Jun 7 • 25 min
On this bonus episode, Continuing On, Mar interviews her husband, Tom, about his interest in oil painting. Talent v Effort. Mar and Tom have been married for nearly forty years. Tom had encephalitis in 1993. She has been caring for him since then. To know…
E39: Caregiver Bucket List
Jun 6 • 29 min
Mar and Jen review recent #caregiverchaos, doing deep work on self-care, and giving yourself permission to course correct. Show us how you take time for YOU. Post a pic or share a story on social media, tag us, and use the hashtag #selfkindness. You may…
E38: Pandemic - Caregivers May Lead The Way
May 21 • 26 min
Raquel Derrick, Ph.D., of Family Operating Base, joined Mary to share with our listeners how we are partnering in a four-part series. Family Operating Base, FOB – Community, is an effort created by Raquel: When I first envisioned the FOB, it was to be a…
E37: Seeing the Light
May 16 • 36 min
Meet Terry Moore who sees the light. When his wife was diagnosed with Alzheimer’s in 2016, Homeolux’s Founder and CEO Terry Moore paused his retirement and dedicated his focus to searching for a scientific solution to provide hope and help for his family.…
E36: Every Picture Tells a Story
May 4 • 27 min
Mar and Jen catch up, 21st century-style, and discuss all the ways we can tell stories. Mar shares how her love of photography has been affected by limited travel, exploring the ups and downs of adjusting our hobbies to meet current lifestyle…
E35: This COVID Life
Apr 27 • 41 min
Jenn & Mar check in with each other as the COVID-19 shelter-in-place orders continue. We talk about the self-care medical professionals practice, as exampled in an episode of Mar’s favorite tv show NEW AMSTERDAM, and we discuss the pros and cons of…
E34: There, there. Now, now: Caregiving During the COVID-19 Crisis
Apr 10 • 37 min
Jenn & Mar check in with each other as the COVID-19 Crisis Progresses. On a scale of 1-10, where are you? Use these links to explore the resources from today’s show: Meditation is the beginning of mindfulness. Get started with guided meditation by Tara…
E33: Worst Case Reality - Caregiving and Coronavirus
Apr 10 • 38 min
The COVID-19 crisis has impacted millions across the globe. For caregivers, this time is uncertain and frightening. In this episode, Mar and Jenn discuss the effects of the Coronavirus on their families and ways anyone living this caregiver life can try…
E32: Wounded Warrior Project’s Alex Balbir Talks Traumatic Brain Injury
Mar 26 • 37 min
March is Brain Injury Awareness and we’re focusing our efforts on increasing awareness of traumatic brain injury and the challenge. Throughout the month, Mar and Jenn will speak with experts working in the field of TBI, provide strategies for coping and…
E31: Traumatic Brain Injury Rehabilitation
Mar 24 • 39 min
Dr. Norman joins us on this podcast to share her impactful work in the field of Traumatic Brain Injury, TBI, rehabilitation. To say it is work is a misnomer. It is Dr. Norman’s passion in life. When speaking with her it is easy to absorb her love for what…
E30: Hold on to Hope
Mar 20 • 35 min
Judi Logan joins us on this podcast, Hold on to Hope. Judi’s son, Justin, was in a terrible accident in which he flipped his pick-up truck. Justin suffered a serious traumatic brain injury, TBI. He was in a coma for two and a half weeks. Judi shares with…
E29: Ask For Help
Mar 17 • 31 min
Sherri Piper joins us on the podcast. Sherri is married for 25 years to her husband Jay. They have four sons. Sherri has been a caregiver to her husband for six years. Among his other injuries he has a mild traumatic brain injury, TBI. She is the…
E28: Injury Prevention through Self-Regulation
Mar 13 • 33 min
Dr. Quinard Webb, a physical therapist, works closely with TBI Warrior Foundation. He provides physical therapy to TBI Warrior Foundation clients. He also participates in their caregiver training workshops. Dr. Webb is a wealth of information on…
E27: Crystal Clear on Caregiving - A Millennial Shares Her Journey
Mar 10 • 27 min
The month of March is Brain Injury Awareness Month. Meet Crystal Holdipp who cares for mom with a brain injury as a result of a stroke. Crystal’s caregiving extends to her dad as well. Her dad is battling cancer. She is an amazing young woman. Currently,…
E26: Let’s Talk Intimacy
Mar 6 • 28 min
This podcast, Let’s Talk Intimacy, Jen Ransil joined us for an open conversation regarding intimacy and disabilities for couples. Jen is a licensed Marriage and Family Therapist in Pennsylvania; Adjunct Professor, Human Development and Family Science,…
E25: Traumatic Brain Injury & Caregiving
Mar 3 • 41 min
March is Brain Injury Awareness Month. In this episode of This Caregiver Life, we are joined by health scientist Roxana E. Delgado, Ph.D., a national advocate and the wife of Sergeant First Class retired Victor L. Medina, MRC, CRC, a combat-wounded,…
E24: Caregiver DOWN
Feb 23 • 39 min
Jenn and Mar catch up with one another for the first time in a few weeks. Jenn had the flu. Mar had surgery. Proving once again as much as caregivers often seem to be able to do it all, they, too, are human beings subject to illness and the demise of body…
E23: Healing and the Holidays
Dec 21, 2019 • 58 min
On December 21, 2004, a suicide bomber attacked a military dining facility in Mosul, Iraq. Hundreds of service members were having lunch at the time, including Jenn’s younger brother James, an 20-year old Army Specialist serving with the Deuce Four…
E22: The Gift of Us
Dec 19, 2019 • 16 min
Co-host Mary and her husband, Tom, talk about the holidays and stress. From 1993 when Tom was battling a brain infection to his current all-out war with ALS they give some insight on how they make it work in the best way possible. —- Send in a voice…
E21: What About You
Dec 9, 2019 • 20 min
Shawn Moore, a caregiver to her husband, and founder of “Caregivers on the Homefront” talks about the importance of caregivers remembering who they are, and the ways in which she has navigated the holidays in recent years. —- Send in a voice message:…
E20: A Brand New Day
Dec 2, 2019 • 18 min
Tara’s husband, Todd, was wounded in Afghanistan. Two of the men Todd was serving with, who were dear friends of both Todd and Tara, died in battle, on the day Todd was injured. It also happened to be Tara and Todd’s anniversary. Tara shares how they…
E19: Letting Go
Nov 25, 2019 • 18 min
Roxana Delgado joins us for a conversation about reducing stress and letting it go. Roxana cares for her husband, Victor, a veteran who sustained a traumatic brain injury while deployed. —- Send in a voice message:…
E18: Upside Down Holidays
Nov 18, 2019 • 16 min
Caregiver, Lara Garey, loves the holidays. She shares that over the years, traditions evolved that her family loves. When her husband was diagnosed with ALS she created new ones, like an upside Christmas tree, to help them lovingly hold onto the memories…
E17: This Life We Have
Nov 11, 2019 • 16 min
Brian Vines, a veteran, joins us for a frank conversation regarding the holidays and caregiving. He shares insights on how he has cared for his wife, wounded veteran, while also having his mother living with them for a period of time. It would seem that…
Bonus Episode: Time Away
Nov 5, 2019 • 7 min
Mar recently had some time away from daily caregiving. She finds it reviving and energizing. She encourages caregivers to find some time to themselves once in a while. You can find the written piece on Mar’s blog at www.maryhahnward.com —- Send in a voice…
E16: Building Your Community Care Team
Nov 4, 2019 • 28 min
Colleen believes building a good team with family, healthcare providers, and community is highly important in helping her to be the best caregiver possible for her care recipient, her husband. We couldn’t agree more. —- Send in a voice message:…
E15: Politico Panel - Caring on the Homefront
Oct 28, 2019 • 25 min
Jenn shares her recent experience as a panelist on Politico’s program “Caring on the Homefront”. On October 17, 2019, Politico hosted a panel discussion on improving policies that could help military/veteran caregivers. Jennifer was joined on the panel by…
E14: The Future of Family Care with Wellthy’s CEO Lindsay Jurist-Rosner
Oct 6, 2019 • 40 min
Lindsay Jurist-Rosner is the CEO of Wellthy, Inc. based in New York City. Wellthy is helping the 66 million Americans who care for aging, chronically ill, and disabled loved ones. With Wellthy, Lindsay is building the company she needed throughout the…
E13: 2nd Time Around
Sep 25, 2019 • 34 min
Meet Lisa who balances her growing career with caregiving for her husband. Lisa shares insight into how she makes it all work, and how any can keep moving forward in their life, despite setbacks. We also learn about 2nd.md. They connect clients with…
E12: She Loved Him First
Sep 16, 2019 • 40 min
Welcome to Season 2 of “This Caregiver Life”. “He Loved Her First”, Denise Albea shares with us the journey she has been on caring for her dad and how she has found help along the way. Her dad has Parkinson’s Disease and attends a program, Elderhaus, for…
Bonus Episode: Ready For Anything
Sep 6, 2019 • 39 min
Jenn and Mar share their recent experience preparing for Hurricane Dorian, as well as, the focus of the second season of “This Caregiver Life”. Please follow us on our social media platforms. You can find us on Facebook at This Caregiver Life, on Twitter…
E11: Worst Case Scenario
Sep 6, 2019 • 36 min
This episode is a rebroadcast of our companion podcast, Sarcasm Sisters. We relive Mar’s experience preparing for an enduring Hurricane Florence. Caregivers will find tips and suggestions when preparing for natural disasters themselves, and anyone can…
E10: Bringing Home the War with author Marjorie Pennington
Jun 18, 2019 • 48 min
Welcome to our last episode of Season One. Marjorie Pennington, author of “Bring Home the War: The Life of a Military Caregiver”, joined us for an in-depth conversation about being a military caregiver to her husband. “Bringing Home the War” is a powerful…
E9: Burnout with Jean Montjoy, MSW, LCSW
Jun 14, 2019 • 26 min
Jean Montjoy joins us today in a candid conversation about burnout. Jean holds a masters in Social Work, and is a Licensed Clinical Social Worker. She chats with us today about burnout from a professional caregiver perspective. She shares with us her…
E8: Carrying On
May 8, 2019 • 46 min
Caira Benson is a seasoned professional in the nonprofit community, a homeschooling mother of five, and caregiver for her disabled veteran husband and three of their children. Her dedication to providing the best quality of life to her clan is…
E7: Veteran Directed Care - A Call To Action
Apr 30, 2019 • 46 min
Our guest today is Karee White, an Army veteran, married to an Army veteran for 30 years, mother to nine children…yes you read that correctly, and a caregiver to her daughter Kimmy. Kimmy is a wounded veteran with a severe traumatic brain injury. Veteran…
E6: Caring for Children with Severe Allergies
Apr 23, 2019 • 35 min
Megan Smith is an Elizabeth Dole Foundation Fellow and joins us today as our guest. Megan is a caregiver to her husband who was injured in Afghanistan, and a mom of two boys. In addition to her beloved role of mom to her sons, one of them requires…
E5: Cherish The Moments
Apr 16, 2019 • 40 min
Lara Garey is our guest on this podcast. Lara is the spouse, and caregiver, of an Air Force veteran with Amyotrophic Lateral Sclerosis, ALS. Lara is also a newly appointed Elizabeth Dole Foundation Fellow. In this podcast Lara does not hold back on how…
E4 Self Care
Mar 12, 2019 • 53 min
What is self-care and why do we need it? Is your go-to self-care healthy? Is it working? Explore all things self-care in this episode of This Caregiver Life, and visit our Facebook page www.facebook.thiscaregivelife where you can ask questions, share…
E3: When Sepsis Strikes
Feb 12, 2019 • 45 min
Mar and Jenn have a frank conversation regarding sudden, serious illness: sepsis. Jenn is a sepsis survivor of two and a half years. Mar’s spouse, Tom, in addition to having ALS for eight and a half years, recently survived sepsis. They share their…
E2: ALS - Roasting for Research
Jan 20, 2019 • 20 min
This Caregiver Life podcast today focuses on a unique fundraising effort for Amyotrophic Lateral Sclerosis: Roasting for Research. Please join us to learn more about this exceptional campaign that raises awareness, and funding, to help beat back ALS. —-…
E1: Life, Liberty, and the Pursuit of a Bathroom
Jan 10, 2019 • 33 min
In their opening ‘This Caregiver Life’ podcast Jenn and Mar, caregivers to their veterans, share their thoughts on Chicago O’Hare’s new, accessible bathroom: “Changing Places Restroom”. —- Send in a voice message:…