Narcolepsy 360

Narcolepsy 360

www.wakeupnarcolepsy.org
Every person diagnosed with narcolepsy embarks on a unique journey. There is no standard path, and for many, this proves to be among the most challenging aspects of the disorder. The Narcolepsy 360 podcast is a series of interviews that take a panoramic view of narcolepsy from the patient, caregiver, research and clinical perspective. Each conversation draws on experiences, best practices and expert advice from patients, parents and doctors. From the latest research to lifestyle tips, our podcasts shed light on the less discussed issues around narcolepsy. Join Claire Crisp, our Executive Director, as she chats every week with people within our community.


Narcolepsy 360: Dr. Deborah Hartman
Jul 30 • 16 min
Dr. Deborah Hartman leads the global research program for narcolepsy and other sleep-wake disorders at Takeda, a biopharmaceutical company. In this episode, Dr. Hartman talks about Takeda’s approach to studying sleep-wake disorders and the…
Narcolepsy 360: Lauren Thomas
Jul 16 • 42 min
TW: This episode discusses sexual assault and rape, which may be triggering for some individuals. Lauren Thomas is a person with narcolepsy, a narcolepsy advocate and works in the champagne business. In this vulnerable and candid episode, Lauren…
Narcolepsy 360: Dr. David Ingram
Jul 2 • 30 min
Dr. David Ingram is a pediatric sleep physician at Children’s Mercy Hospital. In addition to caring for children with sleep problems in clinic, he is the founding editor of the ATS Pediatric Sleep Case Series and is adjunct faculty in the department…
Narcolepsy 360: Shannon Burkoth
Jun 18 • 35 min
Shannon Burkoth is a person with narcolepsy, mother, and narcolepsy advocate in the rare disease space. In this episode, Shannon shares how she was diagnosed with narcolepsy when she turned 30, but since then has realized she experienced narcolepsy…
Narcoley 360: Kelly Main
Jun 4 • 34 min
Kelly Main is a person with narcolepsy, studying law, and expert sailor living in New Zealand. In this episode, Kelly shares that she struggled with narcolepsy symptoms since her childhood, but because she was so active in sports her diagnosis was…
Doing Life During COVID-19: Homeschooling During a Pandemic with Lindsay Jesteadt
May 9 • 48 min
Part of mission is to provide supportive resources for people with Narcolepsy and their families. During this time of massive daily life alterations, we want to continue to offer those resources. We are all going through a traumatic event…
Doing Life During COVID-19: Trauma + Isolation with Dr. Cynthia Eriksson and Dr. Alison Wong
May 7 • 39 min
Part of mission is to provide supportive resources for people with Narcolepsy and their families. During this time of massive daily life alterations, we want to continue to offer those resources. We are all going through a traumatic event…
Doing Life During COVID-19: Food + Nutrition with Chef Andre Royal
May 2 • 26 min
Part of mission is to provide supportive resources for people with Narcolepsy and their families. During this time of massive daily life alterations, we want to continue to offer those resources. We are all going through a traumatic event…
Doing Life During COVID-19: Pediatrics with Dr. Kiran Maski
Apr 30 • 22 min
Part of mission is to provide supportive resources for people with Narcolepsy and their families. During this time of massive daily life alterations, we want to continue to offer those resources. We are all going through a traumatic event…
Doing Life During COVID-19: Exercise and Movement with Belle Hutt
Apr 25 • 20 min
Part of mission is to provide supportive resources for people with Narcolepsy and their families. During this time of massive daily life alterations, we want to continue to offer those resources. We are all going through a traumatic event…
Doing Life During COVID-19: Mental Health and Mindfulness with Dr. Jason Ong
Apr 23 • 27 min
Part of mission is to provide supportive resources for people with Narcolepsy and their families. During this time of massive daily life alterations, we want to continue to offer those resources. We are all going through a traumatic event together…
Narcolepy 360: Thaddeus Bath
Mar 26 • 29 min
Thaddeus Bath is a person with narcolepsy and is part of Wake Up Narcolepsy’s 2020 #TeamWUN for the Boston Marathon. In this episode, Thaddeus shares how he was diagnosed with narcolepsy Type 2 in 2016. He discusses how sobriety helped realize…
Narcolespy 360: Mike McHargue
Mar 12 • 38 min
Mike McHargue is a bestselling author of Finding God in the Waves, and soon to be released You’re a Miracle (and a Pain in the Ass). He is the host of Ask Science Mike podcast and co-founded The Liturgist Podcast. He also is an international…
Narcolepy 360: Kevin Cosgrove
Aug 29, 2019 • 44 min
Kevin Cosgrove is the Co-founder of Wake Up Narcolepsy, Biologic/Dermatology Sales Professional, and a PWN. In this episode, Kevin details his diagnosis process which led him to found Wake Up Narcolepsy with Monica and David Gow, with the intention to…
Narcolepsy 360: Dr. Emmanuel Mignot
Aug 15, 2019 • 45 min
Dr. Emmanuel Mignot is Professor of Psychiatry and Behavioral Sciences at Stanford University and Director of the . He is internationally recognized for discovering the cause of narcolepsy. Dr. Mignot has received numerous research grants and…
Narcolepy 360: Kayla Douglas
Jul 25, 2019 • 28 min
Kayla Douglas, known as @nomadnarcolepsy on Instagram, is a person with narcolepsy, a narcolepsy life coach and an extensive world traveler! In this episode, Kayla details her childhood with narcolepsy that led to diagnosis. As a child, she…
Narcolepsy 360: Charlie Bain
Jul 11, 2019 • 25 min
Charlie Bain is a person with narcolepsy, who first noticed symptoms of narcolepsy at 19. In this episode, Charlie shares his experience of getting diagnosed with narcolepsy and taking time off from school to adapt to a new lifestyle. He also advises…
Narcolepy 360: Julie Flygare
Jun 20, 2019 • 53 min
Julie Flygare is an author, Founder, CEO & President of Project Sleep, an advocate and a person with narcolepsy. She started the Narcolepsy Not Alone Campaign, the Jack and Julie Scholarships for college-age students with narcolepsy and the Rising…
Narcolepsy 360: Dr. Jason Ong
Jun 6, 2019 • 33 min
Dr. Jason Ong is an Associate Professor in the Dept of Neurology and the Center for Circadian and Sleep Medicine at the Northwestern University Feinberg School of Medicine. In this episode, Dr. Ong and Claire discuss narcolepsy and mental…
Narcolepsy 360: Elle Wales
May 23, 2019 • 32 min
Elle Wales is a graphic designer, known as Falling Asleep Elle (on the internet), creator of narcolepsy memes and a person with narcolepsy. In this episode, Elle shares her diagnosis journey with Claire and how she navigated her university…
Narcolepsy 360: Nicole Jeray
May 9, 2019 • 41 min
Nicole Jeray is an LPGA tour player and long-time advocate for narcolepsy awareness. Since graduating from Northern Illinois University, she has played professional golf worldwide for 22 years. Nicole is her own agent and has negotiated all of her…
Narcolepsy 360: Betsy Ashcraft
Apr 25, 2019 • 31 min
This is this second of a two-episode series in our deep dive into idiopathic hypersomnia and potential relation to type 2 narcolepsy. This week we are speaking Betsy Ashcraft. Betsy Ashcraft is a retired lawyer who practiced law for over 20 years…
Narcolepsy 360: Dr. David Rye
Apr 11, 2019 • 40 min
This is this first of a two-episode series in our deep dive into Idiopathic hypersomnia and potential relation to type 2 narcolepsy. This week we are speaking Dr. David Rye. Dr. David Rye is Professor of Neurology at Emory University, board certified…
Narcolepsy 360: Anna Leigh Marr
Mar 30, 2019 • 43 min
Anna Leigh Marr is an actor, writer, voice-over artist and a person with Narcolepsy. In this episode, Anna shares her diagnosis journey whereupon it took 4 years to get properly diagnosed and all they while she completed her BA at Northwestern…
Narcolepsy 360: Sara Kowalczyk
Mar 14, 2019 • 41 min
Sara Kowalczyk is a mother and women’s health patient advocate, clinical researcher, regulatory writer and person with Narcolepsy. In this episode, Sara shares her diagnosis story but also her decision and experience in becoming a mother. Claire…
Narcolepsy 360: Andre Royal
Feb 28, 2019 • 31 min
Andre Royal is a father, chef, entrepreneur, and person with Narcolepsy. In this episode, Andre shares his complicated journey to get properly diagnosed since he was living with multiple complicated medical conditions. Getting diagnosed created a…
Narcolepsy 360: Tara Stuart
Feb 14, 2019 • 25 min
Tara Stuart is a mother, teacher, daughter of a person with narcolepsy and currently training for the Boston Marathon. In this episode, Tara shares her memories of growing up with her father having narcolepsy and how it affected their family. Tara’s…
Narcolepsy 360: Erin Carey
Jan 31, 2019 • 36 min
Erin Carey is a mother of five girls and two are CWN (children with narcolepsy). When Kyla started showing symptoms of narcolepsy Erin initially thought it was diabetes. When Kyla communicated she was falling asleep at school, Erin knew due to her…
Narcolepsy 360: Kelsey Biddle
Jan 24, 2019 • 45 min
Kelsey Biddle is a PWN (person with narcolepsy) that was diagnosed, just over a year ago, with Type 1 Narcolepsy. In this episode, Kelsey shares the unique journey of being diagnosed within six weeks of the onset of symptoms. Kelsey has taken this…
Narcolepsy 360: Dr. Brian Murray
Jan 17, 2019 • 25 min
Dr. Brian Murray is an Associate Professor, Neurology and Sleep Medicine at University of Toronto Department of Medicine, Chair of Royal College Specialty Committee in Neurology and Head of Division of Neurology & Chair of Research Ethics Board…
Narcolepsy 360: Gina Dennis
Jan 11, 2019 • 57 min
Gina Dennis is a PWN (person with narcolepsy), but is also an FWN (family with narcolepsy), since her mother, son and ex-husband all have narcolepsy. In this episode, Gina shares the decades-long journey to be diagnosed with narcolepsy. She remembers…
Narcolepsy 360: Matt Hieb
Dec 19, 2018 • 50 min
Matt Hieb is the father of Madi, a child living with narcolepsy. In this episode, Matt recounts the journey on getting Madi properly diagnosed with narcolepsy. She was five when her symptoms started, so doctors didn’t take her symptoms as signs of a…
Narcolepsy 360: Dr. Kiran Maski
Dec 5, 2018 • 28 min
Dr. Kiran Maski is a Pediatric Neurologist that specializes in Sleep Medicine. She is the Director of the Neurology Sleep Clinic at Boston Children’s Hospital . In this episode, Dr. Maski shares how she got into studying Sleep Medicine and how she…
Narcolepsy 360: Henry Nicholls
Nov 21, 2018 • 39 min
Henry Nicholls is a person with narcolepsy, an author and science journalist specializing in evolutionary biology, conservation, the history of biology and sleep. His most recent publication is . In this episode, Henry shares about his own experience…
Narcolepsy 360: Monica and David Gow
Nov 14, 2018 • 40 min
Monica and David Gow are co-founders and board members of Wake Up Narcolepsy. They are parents of a young adult with narcolepsy. In this episode, Monica and David share their journey on getting their son properly diagnosed with narcolepsy. The…
Narcolepsy 360: Claire Crisp
Nov 8, 2018 • 34 min
Welcome to the new season of Narcolepsy 360! Claire Crisp is an author, advocate, Executive Director at Wake Up Narcolepsy and mother of a child living with narcolepsy. In this episode, Claire shares her journey on deciding to write a memoir about the…
Narcolepsy 360: Julea Steiner
Mar 17, 2018 • 22 min
Narcolepsy 360: Andee Coppel
Mar 12, 2018 • 30 min
Narcolepsy 360: Dr. Eric Zhou
Mar 12, 2018 • 22 min