Invisible Not Broken

Invisible Not Broken

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Invisible Not Broken- Invisible Illness and Chronic Illness Podcast
Lyme, Fibromyalgia, Migraines, Medication, and Nonbinary Trans Talk Part 2
Jun 18 • 56 min
First an apology on behalf of Skype on the frustrating audio! If any of you tech geniuses know another way to conduct interviews with everyone being able to see each other PLEASE reach out! Otherwise, I PROMISE you this interview is worth listening to…
Lyme, Fibromyalgia, Migraines, Medication, and Nonbinary Trans Talk on Invisible Not Broke
Jun 11 • 49 min
First an apology on behalf of Skype on the frustrating audio! If any of you tech geniuses know another way to conduct interviews with everyone being able to see each other PLEASE reach out! Otherwise, I PROMISE you this interview is worth listening to…
Cost of Chronic Illness A Chronic Illness Podcast
Jun 4 • 69 min
Kyros and I are back on our soapboxes again to take a clear look at the hidden and not so hidden cost of the most expensive hobby you could ever have…chronic illness
Thoracic Outlet Syndrome, Spoonie Business Owners, Pain Management, & Relationships Chronic Illness Edition
May 28 • 72 min
This week we’re talking about the Thoracic Outlet Syndrome with Jen Hein and I have been waiting a long time for this episode because I really want to talk to another person who has a chronic illness and had to close of business that they built. Some of…
Secret Spoonie II A Chronic Illness Podcast
May 21 • 9 min
This is Part II of our Invisible Illness podcast segment: The Secret Spoonie. This episode is all about what it is like to have a secret chronic illness and how that effects friendships and growing up.
Hashimotos, Alopecia, Author Jenny Berk on Body Image, Chronic Illness Parenting, and Zombies A Chronic Illness Podcast
May 14 • 42 min
I had far too much fun interviewing best selling author and coach Jenny Eden (seriously buy her book The Body Image Blueprint). We talk parenting with chronic illness (she has Hashimotos and Alopecia areata). We talk anorexia and body image and raising…
Ulcerative Colitis: Jackson Pollock, Life Hacks, Chronic Fatigue, and Questions To Never Ask Interview with Holly Fowler {Chronic Illness Podcast}
May 8 • 62 min
Click title to listen to interview with Colitiscope Nutrition founder Holly Fowler about her Ulcerative Colitis: Jackson Pollock, Life Hacks, and Questions To Never Ask {Chronic Illness Podcast}
Bipolar, PostPartum Depression, PTSD ,and Migraines : An Invisible Illness Podcast
Apr 30 • 59 min
From the best way to support a spoonie to great ways to manage anxiety to the true story of postpartum depression with and without medication this episode is absolutely full of great spoonie life hacks and some real information about bipolar, anxiety, and…
Faking it: From Disability Placards To Service Dogs: Chronic Illness Podcast
Apr 23 • 50 min
Kyros and I heavily debated doing this episode on Faking It All About Disability Placard and Service Animal Abuse of the System. Though we are not fans of calling people out this has become such an issue in our and others lives. The abuse of the system…
Multiple Sclerosis Lab Rat Side Hustle Alternate Pain Management & A Healthy Dose of Controversy {A Chronic Illness Podcast}
Apr 18 • 61 min
This week Lucas Robak was kind enough to talk about his experiences with Multiple Sclerosis, time as a lab rat, and some interesting views (his please don’t sue us) on the medical system, charity and research organizations, and medicine in the US.
Polycythemia Vera: Vampires Would Love Her {Chronic Illness Podcast}
Apr 10 • 41 min
Hello everyone thank you for being patient this week I was regular sick. I truly believe that those of us with chronic illness should be given a pass on the flu but hey no-one asked me. This week I am talking with the author of You Are Not Your Diagnosis…
Secret Spoonie Our Newest Blogger About Life In The Chronic Illness Closet {Chronic Illness Podcast}
Apr 2 • 5 min
Introducing Hidden In Plain Sight a monthly column from our secret spoonie about life from inside the chronic illness closet.
Chronic Migraine Interview With Kevan From Made In California {Chronic Illness Podcast}
Mar 27 • 65 min
An interview with Kevan, the owner of Made In California who suffers from chronic migraines. This week is near and dear to my heart, chronic migraines are not unknown in my house. We really went into the weeds on what it is like to being a student,…
Remitting MS and Interview With Lauren Selfridge from This Is Not What I Ordered A Chronic Illness Podcast
Mar 20 • 64 min
Lauren Selfridge had remitting MS is a therapist in the SF Bay Area and runs a wonderful chronic illness podcast called This Is Not What I Ordered. To be VERY clear Lauren is on the calmer side of the spectrum of MS that though has bad days at this time…
Burning Nights: CRPS and Double Amputations: Chronic Illness Podcast
Mar 12
Show Notes For Victoria Abbott Fleming who has CRPS and Founded Burning Nights Complex Regional pain syndrome USE to be RSD Bilateral Double amputee 24 from a barrister and teacher onto a new normal of hospitals and years of tests and issues that lead to…
Bed Rest and Chronic Illness A Panel: Lupus, Fibromyalgia, and EDS How To Live A Meaningful Life From Bed Rest {A Chronic Illness Podcast}
Mar 5
Lupus, Fibromyalgia, EDS, and a Car Accident: Karma needs to chill. A discussion with naturopath Elizabeth Clamon from Clamon Natural Health, and Monica Michelle who between the two of them are dealing with Chronic Fatigue, Lupus, Ehlers Danlos, Chronic…
Everything you wanted to know about Medical Marijuana : Laws, Health, and the Other Side of Legality: It’s Not Easy Being Green
Feb 26 • 59 min
What we Covered In Less Than An Hour! What does a lab do for medical marijuana? Jessica Peters of Moxi CBD rich tinctures now out of business because of Santa Rosa fires. Keep an eye out for her next business venture. Came to medical marijuana for her…
Chronic Fatigue PCOS A Real Life What Would Happen If Your Life Changed Completely In One Day {Chronic Illness Podcast}
Feb 19 • 65 min
Listen this week to Invisible Not Broken Interview Spoonie Blogger Frances (Fancy Like That) We talk about her Chronic Fatigue Syndrome (now called CFS or ME) and how your entire life and goals can change on a Monday. Give a listen to find out how to make…
Disability and Travel International Ideas, Frustrations, and Tips from Spoonies Who Have Been There {Chronic Illness Podcast)
Feb 12 • 53 min
So Kyros just got back from traveling overseas and came back to talk all about disability and travel. He traveled all over Europe and India and has so much to say about disability and travel. He will be doing a long running blog series all about his…
Chronic Pain, Opioid Crisis, and Medical Marijuana a Conversation with Karina Strum
Feb 5 • 16 min
Karina Strum interviews Monica Michelle about daily life with Medical Mariuana, Chronic Pain, Opioids, and Ehlers Danlos Syndrome
Work, Disability, and the Spoonie Life {A Chronic Illness Podcast}
Jan 29 • 59 min
Disability, staying home, guilt, and screwing with the feminist agenda. Trying to get over “letting down” the people in your life by staying home for disability. Some behind the scenes of what happened when Monica Michelle had to shut down her Menlo Park…
Searching For A Diagnosis Prescious My Prescious: A Chronic Illness Podcast
Jan 22 • 62 min
What it’s like when ALL your medical tests show you are the healthiest sick person Oh that’s a thing and the amazing crazy things your body can do with chronic illness You know that feeling when you can’t breathe…yay like that most of the time Is it…
Running A Business While Having Chronic Illness Some Tips Some Pitfalls and Some Hope {A Chronic Illness Podcast}
Jan 15 • 58 min
Two women in business while also dealing with chronic illness have a VERY honest discussion about pitfalls, planning, and vision in business while being a spoonie. Invisible Not Broken began because I have seen what happens when everyone is too frightened…
Get This Woman A Cape: Dealing With NF: Chronic Illness and Parenting Children with Chronic Illness: And Some Kick Ass Snowboarding and Other Self Care Tips {Chronic Illness Podcast}
Jan 1 • 60 min
Welcome to this week’s chronic illness podcast episode of Invisible Not Broken. This week I am talking with Elana who has the chronic illness condition neurofibromatosis, bipolar and partial blindness. Along with her chronic illness, she is a caregiver to…
Holidays & Parties Spoonie Survival Guide {Chronic Illness Podcast}
Dec 24, 2017 • 10 min
Holidays with chronic illness This is super general and done just from my perspective. Take what works for you drop what doesn’t and tweet your own tips to @invisiblenotbrk and help another spoonie out! Remember we are not medical professionals, if we…
Darwin Has Some Explaining To Do: Endometriosis and Hysterectomy {A Chronic Illness Podcast}
Dec 18, 2017
A Chronic Illness Podcast About Endometriosis What is your disorder? * Endometriosis At what age did your disorder become a daily issue? * 22 Who were you before your illness became debilitating? * I had so much more energy What would you do if you were…
Chronic Illness Misconceptions, Spoon Theory Explained, Handicap Parking Peanut Gallery, and How To Be Really Nice To The Spoonie In Your Life
Dec 11, 2017 • 64 min
Chronic Illness Misconceptions, Spoon Theory Explained, Gender Roles and chronic illness, Political Rages (Monica), How To Be Really Nice To The Spoonie In Your Life, Oscar Level Pain Performance, The Dangers of Pain Scale, Why Chronic Illness is Not Like…
Crohn’s Disease: College and Invisible Illness, Parenting with Invisible Illness, Joys and Pitfalls of Canadian Healthcare, and The Ultimate Toxic Friend Cleanse
Dec 4, 2017 • 62 min
This week on our chronic illness podcast, Invisible Not Broken, I interviewed a woman who has Crohn’s Disease. Learn about what a diagnosis like Crohn’s can be like in college, dating with a chronic illness, the Canadian healthcare system, parenting with…
A Real Talk About Pain Management: The Cost Of Chronic Pain: The Opioid Epidemic in Four Letter Words: A Chronic Illness Podcast
Nov 27, 2017 • 49 min
A Real Talk About Pain Management: The Cost Of Chronic Pain: The Opioid Epidemic in Four Letter Words: A Chronic Illness Podcast Chronic Illness Podcast
Fibromyalgia, A Spoonie in Business, Selfcare, Best Gifts to Give Someone Who has Chronic Illness, & The Joys of Hormones and Chronic Illness
Nov 22, 2017 • 62 min
I bow down to this rockstar. Eva manages her chronic illness, fibromyalgia and has a tech startup to help us spoonies find the best medical care for our condition. It is called Wellacopia. Go visit now while you listen! I hope you adore her as much as I…
The Ins and Outs of Vasculitis, Rheumatoid Arthritis, Buergers Disease, and Wegners Granulomatosis This Week on our Chronic Illness Podcast
Nov 13, 2017 • 56 min
This might be the longest title we have ever written for a podcast. Please tune in to some real-life hacks with chronic pain and chronic illness. Some things to know about when traveling with medications and chronic illness. Also, something to think about…
Real Romance: Carbs and Insulin Diabetes and Colitis: Parenting With Chronic Illness: Invisible Illness Serial Podcast
Nov 6, 2017 • 66 min
Vanessa’s Disorder Info Name *Vanessa Jean Locke Age * 44 What is your disorder? * Diabetes Type 1, Ulcerative Colitis, Hypo Thyroid, Vitiligo and Sjogrens (eyes) At what age did your disorder become a daily issue? * 11 Who were you before your illness…
EDS,MCA, POTS, Collect Them All: German Socialized Medicine, Medical Marijuana, UBER WE HAVE AN IDEA FOR YOU: Chronic Illness Serial Podcast
Oct 30, 2017 • 61 min
I have made choice of not doing just one or even two posts of a diagnosis (you might remember my interview). The reason is that each of us has a different experience with our disorders and I want to show how wildly different stories can be even when they…
Who Knew You Could Live Without Kidneys? {Chronic Illness Podcast}
Oct 23, 2017 • 62 min
Robert’s Podcast Links Hemodialysis - https://www.medicinenet.com/dialysis/article.htm ACA - https://en.wikipedia.org/wiki/Patient_Protection_and_Affordable_Care_Act Fluids in foods -…
Diabetes The Ultimate in Self Regulation : How To Really Screw Up A College Student’s First Year: Chronic Illness is the Baby that Never Grows Up
Oct 16, 2017 • 63 min
This week on Invisible Not Broken, a chronic illness podcast, mostly about invisible illness, Monica Michelle interviews her cousin who has Type 1 Diabetes. Listen for: How having diabetes (or chronic illness) is like having a newborn. What it’s like to…
Sex and Disability: Everything You Want To Know About Dating and Chronic Illness But Were Afraid To Ask
Oct 9, 2017 • 59 min
So Kyros and I decided to bare it all or in Kyros’ case “bear” it all. Today’s panel discussion is how at least we handle sex, dating, and relationships with our chronic conditions (mine Ehlers Danlos (joints dislocate with no warning), POTS (passing out…
When In Sickness & In Health Gets Real, Denial Isn’t Just a River in Egypt, When Are We Getting Self Driving Cars Again?
Oct 2, 2017 • 55 min
Thank you for listening this week, it’s a special one for me. Colleen and her family have been dear friends and so supportive during my disability journey. You might be able to tell I adore her. Colleen is caring for her husband who has Stargardt’s…
Caregiving For An Adult Brother With Mental Illness Who Lives Across the Country
Sep 25, 2017 • 56 min
Thank you for joining us for a very special interview with one of my favorite people. Katie has been a long time friend and my supplier in cute kittens. She is running multiple businesses while volunteering time to care for sick kittens and she is also…
Ehlers Danlos, Fibromyalgia, POTS, & MCA Collect Them All {Invisible Illness Podcast}
Sep 18, 2017 • 41 min
Today we are talking to me about my invisible illness and many times not so invisible (thank you Ehlers Danlos for dislocations). We will be talking disabled parenting tips, the huge upsides of marijuana, healthcare in America, and chronic illness and…
Invisible Illness and the Adventure of Getting a Diagnosis {Diagnosis: precious, my precious}
Sep 11, 2017 • 30 min
When you have something rare and invisible (with added issues of such things as weight, socioeconomic status, female, or age) many times a doctor has never heard of your illness or had only heard about it in passing in medical school. There can be issues…
A Bear, A Zombie Leg, Food Allergy, Morton’s Neuroma, and Living the Spoonie Life
Sep 4, 2017 • 60 min
Meet my new co-host Kyros. He was one of the first friends I made when we moved. He and his husbands are the most loving and kind men you could ever hope to call friends. Kyros has A Cadaver part in his leg (blame it on the zombie’s leg) Morton’s neuroma…
Gas Lighting: Searching For Chronic Illness Diagnosis in American Healthcare System (Its’ funnier than it sounds and just as frustrating)
Aug 28, 2017 • 58 min
Today I am talking with Jen a mom, a poet, and an amazing artist. We get deep into the weeds of the American health care system, chronic pain, Disney animals not living up to their promise, weight loss Fibromyalgia, what it’s like to look for an invisible…
Fibromyalgia, Anxiety, & College Oh My Part 1 {Invisible Illness}
Aug 21, 2017 • 39 min
This week in Invisible Not Broken I talk to my youngest interviewee Ms. O who is heading to college at the end of this month. We go over what it is like to be a college student with fibromyalgia and anxiety, how to travel with an invisible illness, what…
Amyloidosis, Parenting When Chronically Ill, What Not to Ask Sick People, Best idea for Airbnb {chronic illness podcast}
Aug 12, 2017 • 63 min
Invisible Illness does not get much more invisible than Dawn. I can not remember when she first told me she was sick but I promise I was shocked, even with my invisible illness spidey sense. Please listen to the end to find out the best questions to ask a…