Invisible Not Broken

Invisible Not Broken

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Invisible Not Broken- Invisible Illness and Chronic Illness Podcast
Epilepsy, Philosophy, Creative Writing, and Rose Colored Glasses
Aug 14 • 71 min
Creative writing and memoir writingWhat it’s like to come out of a seizure Vulnerability of seizuresSecret Super Power of Invisible DisabilityDating and EpilepsyNot Drinking SociallyMy Cat Tries To Crash The InterviewMedical Marijuana and Epilepsy…
Being A Teenager With Chronic Illness, NMO, Depression, ME, Homeschool , and Chronic Pain
Aug 8 • 64 min
Join the Dark (Humor) Side Sign Up For Our VERY Infrequent Newsletter Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! LinksMore Than A Spoonie BlogYoung People With Chronic…
Part 2 Ehlers Danlos Pirate Service Dog CDIF CRPS Part 2 {A chronic illness podcast}
Jul 31
Come to the Dark (Humor) Side, Sign Up & Join Us Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Follow Desiree Instagram FollowSirius @sirius.service.dogDesiree @desireejaykinsWhat is…
30 Day in the Spoonie Life Video Challenge From Your Chronic Illness Podcast Invisible Not Broken
Jul 23 • 3 min
#30dayspooniechallenge. JOIN THE DARK (HUMOR) SIDE Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! So this is stupid simple and all you need to do is just post a video or a picture of…
Ehlers Danlos Pirate Service Dog CDIF CRPS {A chronic illness podcast}
Jul 16
Come to the Dark (Humor) Side, Sign Up & Join Us Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Follow Desiree Instagram FollowSirius @sirius.service.dogDesiree @desireejaykinsWhat is…
Travel and Disability: Tips, Tricks, for Roadtrips, Planes, and Family Reunions When You Have A Chronic Illness
Jul 9 • 54 min
Join The Dark (Humor) Side Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Before you travelMake sure you have more than enough meds to get you through the trip. (My rule of thumb is…
Don’t Try This At Home An Experiment In Pain Medication: Chronic Illness Blog
Jul 2 • 15 min
Join the Dark (Humor) Side Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Alright maybe I have listened to too many Tim Ferris Podcast episodes (no really super motivating. Give it a…
Lyme, Fibromyalgia, Migraines, Medication, and Nonbinary Trans Talk Part 2
Jun 18 • 56 min
Join Us Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Warning: We really got into some intense issues from body issues, to disordered eating to suicide. If these are upsetting please…
Lyme, Fibromyalgia, Migraines, Medication, and Nonbinary Trans Talk on Invisible Not Broke
Jun 11 • 49 min
Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Warning: We really got into some intense issues from body issues, to disordered eating to suicide. If these are upsetting…
Cost of Chronic Illness A Chronic Illness Podcast
Jun 4 • 69 min
Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Panel Discussion: The Cost of Having an Invisible Illness Important Note:According to a 2017 RAND study, as of 2014, 60…
Thoracic Outlet Syndrome, Spoonie Business Owners, Pain Management, & Relationships Chronic Illness Edition
May 28 • 72 min
Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! This week we’re talking about the Thoracic Outlet Syndrome with Jen Hein and I have been waiting a long time for this episode…
Secret Spoonie II A Chronic Illness Podcast
May 21 • 9 min
Subscribe Sign up with your email address to receive news and updates. First Name Last Name Email Address Sign Up We respect your privacy. Thank you! Hidden in Plain SightThe Life of a Secret Spoonie: Part Two: Origins Hello everyone and welcome back to…
Hashimotos, Alopecia, Author Jenny Berk on Body Image, Chronic Illness Parenting, and Zombies A Chronic Illness Podcast
May 14 • 42 min
The Body Image Blueprint: Your Go-To Guide for Radical Self-Reverence By Jenny Eden Berk MSEd Show NotesThe Body Image BlueprintJenny Eden CoachingHashimotosAlopecia AreataBody DysmorphiaNational Eating Disorder HelplineSarah SilvermanTime FerrisAdam…
Ulcerative Colitis: Jackson Pollock, Life Hacks, Chronic Fatigue, and Questions To Never Ask Interview with Holly Fowler {Chronic Illness Podcast}
May 8 • 62 min
Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! Visit Colitiscope Nutrition Holly Fowler’s blog: www.colitiscopenutrition.comHolly Fowler’s Instagram:…
Bipolar, PostPartum Depression, PTSD ,and Migraines : An Invisible Illness Podcast
Apr 30 • 59 min
From the best way to support a spoonie to great ways to manage anxiety to the true story of postpartum depression with and without medication this episode is absolutely full of great spoonie life hacks and some real information about bipolar, anxiety, and…
Faking it: From Disability Placards To Service Dogs: Chronic Illness Podcast
Apr 23 • 50 min
Kyros and I heavily debated doing this episode on Faking It All About Disability Placard and Service Animal Abuse of the System. Though we are not fans of calling people out this has become such an issue in our and others lives. The abuse of the system…
Multiple Sclerosis Lab Rat Side Hustle Alternate Pain Management & A Healthy Dose of Controversy {A Chronic Illness Podcast}
Apr 18 • 61 min
This week Lucas Robak was kind enough to talk about his experiences with Multiple Sclerosis, time as a lab rat, and some interesting views (his please don’t sue us) on the medical system, charity and research organizations, and medicine in the US. Lucas…
Polycythemia Vera: Vampires Would Love Her {Chronic Illness Podcast}
Apr 10 • 41 min
You Are Not Your DiagnosisWhat is your disorder? *polycythemia veraAt what age did your disorder become a daily issue? *25Who were you before your illness became debilitating? *I was a graduate student pursuing a career in academia but I was completely…
Secret Spoonie Our Newest Blogger About Life In The Chronic Illness Closet {Chronic Illness Podcast}
Apr 2 • 5 min
Hidden in Plain Sight The Life of a Secret Spoonie: Part One: Introduction Hello everyone and welcome to Hidden in Plain Sight. This will be a monthly column about the trials and tribulations of living life with invisible illnesses that (most) people…
Chronic Migraine Interview With Kevan From Made In California {Chronic Illness Podcast}
Mar 27 • 65 min
Don’t Forget To Share & Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! An interview with Kevan, the owner of Made In California who suffers from chronic migraines.This week…
Remitting MS and Interview With Lauren Selfridge from This Is Not What I Ordered A Chronic Illness Podcast
Mar 20 • 64 min
“I am an extrovert. My body is an Introvert” — Lauren Selfridge Show notes from Remitting MS and Interview With Lauren Selfridge from This Is Not What I Ordered A Chronic Illness Podcast Lauren Selfridge had remitting MS is a therapist in the SF…
Burning Nights: CRPS and Double Amputations: Chronic Illness Podcast
Mar 12
Subscribe Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! What is your disorder? *Complex Regional Pain Syndrome (CRPS)At what age did your disorder become a daily issue? *24Who were…
Bed Rest and Chronic Illness A Panel: Lupus, Fibromyalgia, and EDS How To Live A Meaningful Life From Bed Rest {A Chronic Illness Podcast}
Mar 5
Lupus, Fibromyalgia, EDS, and a Car Accident: Karma needs to chill.A discussion with naturopath Elizabeth Clamon from Clamon Natural Health, and Monica Michelle who between the two of them are dealing with Chronic Fatigue, Lupus, Ehlers Danlos, Chronic…
Everything you wanted to know about Medical Marijuana : Laws, Health, and the Other Side of Legality: It’s Not Easy Being Green
Feb 26 • 59 min
Links & Show Notes For Medical Marijuana and Chronic Pain Panel DiscussionJason David and child seizures medical marijuanaCharlottes Web CBD treatment for pediatric seizuresSanjay GuptaOprah and Medical MarijuanaSunset Magazine and Medical Marijuana in…
Chronic Fatigue PCOS A Real Life What Would Happen If Your Life Changed Completely In One Day {Chronic Illness Podcast}
Feb 19 • 65 min
Click to See Francis’ Blog QuestionsWhat is your disorder? *CFS (and PCOS) Please read Frances’ blog post about CFS at her blog Fancy Like That and follow all of her social media I spent close to stalker-like hours on her Pinterest page.At what age did…
Disability and Travel International Ideas, Frustrations, and Tips from Spoonies Who Have Been There {Chronic Illness Podcast)
Feb 12 • 53 min
Show Some Love Share And SIgn Up Sign up with your email address to receive news and updates. Email Address Sign Up We respect your privacy. Thank you! So Kyros just got back from traveling overseas and came back to talk all about disability and…
Chronic Pain, Opioid Crisis, and Medical Marijuana a Conversation with Karina Strum
Feb 5 • 16 min
You might remember Karina Strum, if you don’t here is her interview. This is where I got the tables reversed and she interviewed me about my daily life which absolutely includes daily dislocations, opioids, medical marijuana, and daily fear that a…
Work, Disability, and the Spoonie Life {A Chronic Illness Podcast}
Jan 29 • 59 min
Disability, staying home, guilt, and screwing with the feminist agenda.Trying to get over “letting down” the people in your life by staying home for disability.Some behind the scenes of what happened when Monica Michelle had to shut down her Menlo Park…
Searching For A Diagnosis Prescious My Prescious: A Chronic Illness Podcast
Jan 22 • 62 min
Show Notes For This Weeks Chronic Illness PodcastWhat it’s like when ALL your medical tests show you are the healthiest sick personOh that’s a thing and the amazing crazy things your body can do with chronic illnessYou know that feeling when you can’t…
Running A Business While Having Chronic Illness Some Tips Some Pitfalls and Some Hope {A Chronic Illness Podcast}
Jan 15 • 58 min
“Sucess is not final: failure is not fatal it is the courage to continue that counts” — Winston Churchill “I’m scared of how much my body will limit my vision for this.” — Monica Michelle Two women in business while also dealing with…
Get This Woman A Cape: Dealing With NF: Chronic Illness and Parenting Children with Chronic Illness: And Some Kick Ass Snowboarding and Other Self Care Tips {Chronic Illness Podcast}
Jan 1 • 60 min
Please download images to share the podcast on social media.Show NotesWelcome to this week’s chronic illness podcast episode of Invisible Not Broken. This week I am talking with Elana who has the chronic illness condition neurofibromatosis, bipolar and…
Holidays & Parties Spoonie Survival Guide {Chronic Illness Podcast}
Dec 24, 2017 • 10 min
Holidays with chronic illnessThis is super general and done just from my perspective. Take what works for you drop what doesn’t and tweet your own tips to @invisiblenotbrk and help another spoonie out! Remember we are not medical professionals, if we were…
Darwin Has Some Explaining To Do: Endometriosis and Hysterectomy {A Chronic Illness Podcast}
Dec 18, 2017
What is your disorder? *EndometriosisAt what age did your disorder become a daily issue? *22Who were you before your illness became debilitating? *I had so much more energyWhat would you do if you were not dealing with your invisible illness? *I think I…
Chronic Illness Misconceptions, Spoon Theory Explained, Handicap Parking Peanut Gallery, and How To Be Really Nice To The Spoonie In Your Life
Dec 11, 2017 • 64 min
“It’s not just us missing society. We are also missing FROM society” — Monica Michelle Misconceptions of Chronic Illness Lisen to our most shareable episode. Send our chronic illness episode to the person you wish understood chronic illness…
Crohn’s Disease: College and Invisible Illness, Parenting with Invisible Illness, Joys and Pitfalls of Canadian Healthcare, and The Ultimate Toxic Friend Cleanse
Dec 4, 2017 • 62 min
This week on our chronic illness podcast, Invisible Not Broken, I interviewed a woman who has Crohn’s Disease.Learn about what a diagnosis like Crohn’s can be like in college, dating with a chronic illness, the Canadian healthcare system, parenting with…
A Real Talk About Pain Management: The Cost Of Chronic Pain: The Opioid Epidemic in Four Letter Words: A Chronic Illness Podcast
Nov 27, 2017 • 49 min
A Real Talk About Pain Management: The Cost Of Chronic Pain: The Opioid Epidemic in Four Letter Words: A Chronic Illness Podcast Chronic Illness Podcast.Kyros and I have dealt with Chronic pain for years. You can listen to either of our episodes to hear…
Fibromyalgia, A Spoonie in Business, Selfcare, Best Gifts to Give Someone Who has Chronic Illness, & The Joys of Hormones and Chronic Illness
Nov 22, 2017 • 62 min
Fibromyalgia and starting a tech business as a spoonie I bow down to this rockstar. Eva manages her chronic illness, fibromyalgia and has a tech startup to help us spoonies find the best medical care for our condition. It is called Wellacopia. Go visit…
The Ins and Outs of Vasculitis, Rheumatoid Arthritis, Buergers Disease, and Wegners Granulomatosis This Week on our Chronic Illness Podcast
Nov 13, 2017 • 56 min
“What are you the most fearful of and what are you the most hopeful for in the future?: Most fearful of leaving this world at a young age as I am an only child and recently lost my father which means my mother would be all alone. My hope is that with…
Real Romance: Carbs and Insulin Diabetes and Colitis: Parenting With Chronic Illness: Invisible Illness Serial Podcast
Nov 6, 2017 • 66 min
“The reminding part can be absolutely exhausting. When you feel like you’re talking to a brick wall (parenting with chronic illness)” — Vanessa My Silly Billy, Squeaky Cheeky, Floppy Poppy Family By Vanessa Jean Locke Disorder InfoName *Vanessa…
EDS,MCA, POTS, Collect Them All: German Socialized Medicine, Medical Marijuana, UBER WE HAVE AN IDEA FOR YOU: Chronic Illness Serial Podcast
Oct 30, 2017 • 61 min
“I had always defined myself by my achievements ” — Karina I have made choice of not doing just one or even two posts of a diagnosis (you might remember my interview). The reason is that each of us have a different experiance with our disorders…
Who Knew You Could Live Without Kidneys? {Chronic Illness Podcast}
Oct 23, 2017 • 62 min
“Denial? Or I’m just a tough jackass that won’t just die” — Robert Fukushima Bad Ass With No Kidneys Hemodialysis ACA Fluids in foods Hyperphosphatemia Flavor Boosting Phosphates in food Artificial Kidney More about Artificial KidneysKidney…
Diabetes The Ultimate in Self Regulation : How To Really Screw Up A College Student’s First Year: Chronic Illness is the Baby that Never Grows Up
Oct 16, 2017 • 63 min
Diabetes Type 1Neuropathy Diabetes AssociationInsulin PumpInsulinArtificial PancreasThank you so much for joining us this week. Please share this episode with a friend you think would enjoy and don’t forget to subscribe and leave kind words for us.Until…
Sex and Disability: Everything You Want To Know About Dating and Chronic Illness But Were Afraid To Ask
Oct 9, 2017 • 59 min
Please share our podcast and feel free to grab any of our images to use on your social media posts!
When In Sickness & In Health Gets Real, Denial Isn’t Just a River in Egypt, When Are We Getting Self Driving Cars Again?
Oct 2, 2017 • 55 min
“Be like water always finding a path” — Colleen White Thank you for listening this week, it’s a special one for me. Colleen and her family have been dear friends and so supportive during my disability journey. You might be able to tell I adore…
Caregiving For An Adult Brother With Mental Illness Who Lives Across the Country
Sep 25, 2017 • 56 min
“It was all about me trying to project this image. To whom? No idea, myself I guess. Like anyone was looking.” — Katie Don’t forget to share Invisible Not Broken with a friend or a caregiver you know.Until next week Be kind. Be gentle, Be a…
Ehlers Danlos, Fibromyalgia, POTS, & MCA Collect Them All {Invisible Illness Podcast}
Sep 18, 2017 • 41 min
“What you do is not who you are.” — Monica MIchelle Invisible Illness: Which one do I qualify as sick? Also, a little window into my daily world Every time I rattle off my disorders I almost have to count them off on my fingers. Did I forget…
Invisible Illness and the Adventure of Getting a Diagnosis {Diagnosis: precious, my precious}
Sep 11, 2017 • 30 min
Your Hosts Kyros Starr Monica Michelle Welcome to the first-panel discussion for Invisible Not Broken. My co-host Kyros and I are going to be talking about the most elusive and mythic beast in Invisible Illness world: getting the diagnosis.For many…
A Bear, A Zombie Leg, Food Allergy, Morton’s Neuroma, and Living the Spoonie Life
Sep 4, 2017 • 60 min
Meet my new co-host Kyros. He was one of the first friends I made when we moved. He and his husbands are the most loving and kind men you could ever hope to call friends. If you ever see Kyros you would know why he would be someone you would think to ask…
Gas Lighting: Searching For Chronic Illness Diagnosis in American Healthcare System (Its’ funnier than it sounds and just as frustrating)
Aug 28, 2017 • 58 min
“I put it down to herd animal weakness. I don’t want to show I could get picked off…I don’t want anyone to know..I’m here as the weakest gazelle going oh shit!” — Jen Toal Did I get lucky! I got to make a new friend. I hope you enjoy listening…
Fibromyalgia, Anxiety, & College Oh My Part 1 {Invisible Illness}
Aug 21, 2017 • 39 min
Thank you so much for joining me in this weeks episode of Invisible Not Broken. Today I am going to be talking to Ms. O about her Fibromyalgia symptoms and some of her Fibromyalgia Treatment as well as her anxiety symptoms all while the wonderful girl is…
Amyloidosis, Parenting When Chronically Ill, What Not to Ask Sick People, Best idea for Airbnb {chronic illness podcast}
Aug 12, 2017 • 63 min
Invisible Illness does not get much more invisible than Dawn. I can not remember when she first told me she was sick but I promise I was shocked, even with my invisible illness spidey sense. Please listen to the end to find out the best questions to ask a…