Ask The Expert - A BloodStream Media Podcast

Ask The Expert - A BloodStream Media Podcast

www.bloodstreammedia.com
Ask The Expert from BloodStream Media is a podcast series features hematologists and other healthcare experts answering listener-submitted questions about hemophilia, von willebrand disease, and other inherited bleeding disorders. Learn more at BloodStreamMedia.com. The content contained within Ask The Expert is for informational purposes only. Please consult your health care provider before making any decisions about treatment.


Ask The Expert - 33: Paradigm Shift in Hemophilia Treatment w/ - Dr. Michael Wang, M.D.
Nov 25 • 52 min
As we enter into a new phase of hemophilia treatments and products, the questions continue to grow and become more complicated by the day. Check out the latest episode of Ask the Expert, where we welcome Dr. Michael Wang, M.D. from the University of…
32: Surprise Billing 101 w/ Miriam Goldstein and Sonji Wilkes - October 28, 2019
Oct 28 • 56 min
Imagine doing your due diligence for an upcoming medical procedure by double checking your facility and providers are in-network with your insurance plan, only to later find out that a provider treating you (e.g., an anesthesiologist or radiologist)…
31: MyBDC w/ Michelle Witkop and Maria Santaella - September 23, 2019
Sep 23 • 63 min
As a member of the rare disease community, bleeding disorder patients and their families are used to taking surveys, signing up for clinical trials, and/or sharing our thoughts about what it is like living with a bleeding disorder. So what makes this…
30: Hemophilia Foundation of Michigan - Camp Bold Eagle Team - August 26, 2019
Aug 26 • 61 min
Hemophilia Foundation of Michigan’s Camp Bold Eagle is turning 50 this year! Camp Bold Eagle is the longest running summer camp for kids and teens with bleeding disorders in the United States and to celebrate this incredible accomplishment and to…
29: Does Treatment Adherence Mean Healthy Joints? w/ - Cindy Bailey, Ph.D - July 22, 2019
Jul 22 • 50 min
Is a healthy joint an active joint or a stagnant joint? How many bleeds does it take to create damage? How does treatment adherence compliment our activity levels and joint health? Join us for the latest episode of Ask the Expert where…
28: Gender Bias in Healthcare w/ - Christie VanHorne - June 24, 2019
Jun 24 • 56 min
Did you know that women are twice as likely as men to be diagnosed with a mental health condition when presenting cardiovascular symptoms? Or that, on average, it takes women ten years to be diagnosed with endometriosis? On the latest episode of Ask…
27: Creator and Founder of “Parents Empowering Parents” - Danna Merritt - May 27, 2019
May 27 • 87 min
The latest episode of Ask the Expert features a conversation with Danna Merritt, a chronic disease social worker with over 50 years experience counseling parents of a child with a serious medical condition. Danna is creator and founder of Parents…
26: Value of Board Services w/ Jorge de la Riva - April 22, 2019
Apr 22 • 42 min
Are you considering board service with your local chapter or a national organization? Maybe you are currently serving on a board and know the unique struggle this volunteer position can face. Join us for a special Ask the Expert episode as we sit down…
25: Do Our Stories Actually Matter w/Bruce Barnum - March 25, 2019
Mar 25 • 48 min
Ever wonder what happens after you meet with a legislator and their staff? Ever wonder what they do with your courageous, compelling stories? Can you actually affect policy changes by advocating? Do your stories even matter? Join us for a special…
24: Copay Accumulator Adjustment Programs Episode w/ Kollet Koulianos - February 25, 2019
Feb 25 • 70 min
Do you use copay cards to access your clotting factor? What if those cards were used by your insurance company but didn’t go towards your deductible or out-of-pocket max so you end up with a huge bill for your factor? This is called Copay…
23: Global Health w/ Chris Bombardier - January 28, 2019
Jan 28 • 34 min
New Ask the Expert host, Amy Board, sits down with previous ATE host Chris Bombardier! We ask Chris about his next adventure as the executive director of Save One Life and the future of the organization. Save One Life is a global non-profit founded by…
22: Travel w/ Donnie Akers - December 24, 2018
Dec 24, 2018 • 51 min
This month on Ask the Expert, community advocate Donnie Akers joins Chris to discuss the in’s and out’s of traveling with your bleeding disorder, such as navigating the airport with your medication, what rights you have as a person with mobility…
21: The Importance of Art - w/ Justin Levesque - November 26, 2018
Nov 26, 2018 • 44 min
In this episode of the Ask The Expert podcast, we interview Justin Levesque about the influence his bleeding disorder has had on his work as an artist, discuss how art can be used to express the challenges we face living with a bleeding disorder and…
20: Women with Bleeding Disorders - w/ Tammy Davenport - October 29, 2018
Oct 29, 2018 • 35 min
Imagine having all the symptoms, and even the diagnosis of hemophilia, but you constantly hear that it’s impossible for you to have the condition. You undergo surgery without having factor available, suffer from bleeds and are placed in…
19: The Model Volunteer - w/ Maryann May - September 24, 2018
Sep 23, 2018 • 29 min
Non-profit organizations couldn’t function without the critical work of VOLUNTEERS. Whether on the national or local level, volunteers help communities CONNECT. Volunteers serve on boards of directors, chair committees to organize fundraisers and…
18: Career Counselor Episode - w/ Don Molter - August 27, 2018
Aug 27, 2018 • 38 min
Summer is already coming to a close and for many families that means their kids are heading back to school or off to college. It’s an exciting time, but what if you aren’t ready for college or you don’t feel like that’s the right path for you?…
17: Mental Health - w/ Debbie de la Riva - July 23, 2018
Jul 23, 2018 • 64 min
Mental illness in the bleeding disorders community is a challenging topic to discuss, but given that approximately one-third of people with a chronic illness experience symptoms of depression, it’s clearly a topic in need of more attention. This…
16: Nutrition - w/ Tracy Mann - June 25, 2018
Jun 25, 2018 • 31 min
One of the easiest ways to keep our bodies healthy on a day to day basis is by eating well, but it’s also one of the hardest commitments to make. After a long hard day of work or school, it’s so easy to swing into a fast food restaurant or pop in…
15: Adoption - w/ Shari Luckey - May 28, 2018
May 27, 2018 • 34 min
In many developing countries, children that are born with chronic medical conditions are placed in orphanages. With limited hope for care in these situations one of the best hopes for these children is to be adopted. In this month’s Ask The Expert…
14: Physical Therapy Episode - w/ Sharon Funk - April 22, 2018
Apr 22, 2018 • 44 min
There are many different healthcare providers that make up the the comprehensive care model at hemophilia treatment centers around the United States and much of the developed world. Physicians, nurses, social workers, physical therapists and many…
13: Gene Therapy Episode - w/ Dr. Marilyn Manco-Johnson - March 26, 2018
Mar 26, 2018 • 31 min
The concept of gene therapy has been floating around the hemophilia community for decades, but with recent success in clinical trials, we appear to be getting closer to having an FDA approved treatment. In this episode, we focus on understanding…
12: Community Advocates - w/ Rich Pezzillo - February 26, 2018
Feb 24, 2018 • 37 min
Advocacy has long been a hot topic in the bleeding disorders community, but beyond office visits with state and federal legislators, what does it actually entail? If you have ever wondered about how you can become or grow as an advocate, this…
11: Inhibitors and New Therapies - w/ Dr. Guy Young - January 22, 2018
Jan 21, 2018 • 44 min
The management of inhibitors continues to be one of the greatest challenges facing researchers, clinicians, and patients with hemophilia. Thankfully we seem to have taken a giant step forward vis-a-vie the introduction of Hemlibra, the first and only…
10: Across The Globe - w/ Laurie Kelley - December 25, 2017
Dec 25, 2017 • 41 min
For the last 27 years, Laurie Kelley has dedicated herself to educating and improving the lives of families impacted by hemophilia, hemophilia and inhibitors, and von willebrand disease, both here in the United States and internationally throughout…
9: The Great Outdoors- w/ Pat Torrey - November 27, 2017
Nov 27, 2017 • 37 min
“I can’t do that.” “That’s not for me.” “I’m not able to do that.” Thinking about the outdoors and outdoor activities can be intimidating for people living with a bleeding disorder. But should they be? Are the outdoors…
8: Preparing for the Holidays - w/ Eric Iglewski - October 23, 2017
Oct 23, 2017 • 31 min
Food, family, food, travel, more food, money, more food still- the holidays can be a really stressful time! On this episode, social worker Eric Iglewski from the Mary M. Gooley Hemophilia Center in Rochester, New York joins Ask The Expert to talk…
7: Aging with Hemophilia- w/ Randy Curtis - September 25, 2017
Sep 25, 2017 • 22 min
In this episode Randy Curtis, the Hemophilia Council of California’s Board President and longtime community activist, joins Ask The Expert to answer questions on aging with hemophilia, and the how he and peers in the Baby Boomer and Generation-X…
6: Back to School - w/ Carrie Koenig - August 28, 2017
Aug 27, 2017 • 37 min
In this episode Carrie Koenig, the Hemophilia Federation of America’s (HFA) Families Program Manager, identifies the most important considerations for parents and families preparing for back-to-school season. What should parents of children with…
5: ISTH Recap - w/ Dr. Steven Pipe - July 24, 2017
Jul 24, 2017 • 38 min
In this episode, Dr. Steven Pipe, a pediatric hematologist out of the University of Michigan who is also the chair of the National Hemophilia Foundation’s Medical and Scientific Advisory Council (MASAC) discusses the major takeaways from the…
4: Healthcare Legislation and Advocacy - w/ Katie Verb - June 27, 2017
Jun 27, 2017 • 36 min
In this episode, Katie Verb, the Director of Policy and Government Relations for the Hemophilia Federation of America, answers questions on health care legislation, advocacy, and the extraordinarily-troubling Better Care Reconciliation Act (BCRA) that…
3: Women with Bleeding Disorders - w/ Dr. Robert Sidonio - May 22, 2017
May 21, 2017 • 41 min
In this episode Dr. Robert Sidonio, an Assistant Clinical Professor of Pediatrics at Emory University Hospital and the Clinical Director of Hemostasis/Thrombosis at the Children’s Hospital of Atlanta, answers questions on and about women with…
2: Questions for your Pediatric Hematologist Part 2 - w/ Dr. Arash Mahajerin - February 27, 2017
Feb 27, 2017 • 40 min
In this episode, pediatric hematologist Dr. Arash Mahajerin is back to answer listener-submitted questions on the future of portacaths for kids with hemophilia, what to do when mysterious bruising or joint pain begins to show, and marijuana- is it a…
1: Questions for your Pediatric Hematologist - w/ Dr. Arash Mahajerin - January 30th, 2017
Jan 29, 2017 • 37 min
In this - our first! - episode, Dr. Arash Mahajerin, a pediatric hematologist at the Children’s Hospital of Orange County (California) and Assistant Clinical Professor at the University of California, Irvine, answers listener-submitted questions about…