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BloodStream

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BloodStream Podcast


Ep. 42: November 18, 2019 - w/ Cazandra Campos-MacDonald
Nov 18 • 78 min
Patrick shares moments from DISORDER: The Rare Disease Film Festival, author & advocate Cazandra Campos-MacDonald joins to discuss her new book Dear Hemophilia, we discuss Open Enrollment’s closing on December 15th, provide you a first-hand…
Ep. 41: October 21, 2019 - w/ Daniel DeFabio from the Rare Disease Film Festival
Oct 21 • 111 min
Natalie interviews attendees of NHF’s 71st Bleeding Disorders Conference, Amy & Debbie recap a mental health session from the conference, and we preview a brand new podcast series featuring an incredible community story from Vanessa Flora. …
Ep. 40: September 15, 2019 - w/ Dr. Katherine High
Sep 16 • 117 min
NHF’s 71st Bleeding Disorders Conference (BDC) is just weeks away, the stress of back-to-school season is in full effect, and might Tai Chi be, “An Ancient Remedy for Modern Times” that we all need? Rick Starks says so! Nutrition…
Ep. 39: August 19, 2019 - w/ Dr. Austin Chiang, MD MPH
Aug 17 • 87 min
Is gun control a healthcare issue? Why is CBD everywhere? What new assistive device did Patrick buy? We discuss it all, plus, Association for Healthcare Social Media Founder and President Dr. Austin Chiang joins to discuss his mission,…
Ep. 38: July 15, 2019 - w/ Special Infusion Segment
Jul 14 • 72 min
This month on The BloodStream Podcast host Natalie infuses host/husband Patrick for the first time, on mic (and video)! Listen to the discussion around first infusions, infusion anxieties, and more on our Special Infusion Segment. A new Mental…
Hemophilia and Young Adulthood, Part 3 - Dating & Intimacy, Family, and Hope
Jun 27 • 23 min
In Part 3 of the Hemophilia and Young Adulthood podcast series presented by BloodStream Stories, members of the Hemophilia Association of New Jersey (HANJ) give their perspectives on DATING & INTIMACY, how hemophilia plays a role in a young…
BloodStream Stories - Hemophilia and Young Adulthood, Part 2 - Limits, Pain, and Substance Abuse
Jun 27 • 32 min
In Part 2 of the Hemophilia and Young Adulthood podcast series presented by BloodStream Stories, members of the Hemophilia Association of New Jersey (HANJ) discuss PUSHING LIMITS and finding boundaries, the need for EMOTIONAL SUPPORT, various forms of…
BloodStream Stories - Hemophilia and Young Adulthood Series - Part 1: Identity, Disclosure & Transitions
Jun 27 • 31 min
BloodStream Stories presents Hemophilia and Young Adulthood, a special three-part podcast. In Part 1, eight young adult members of the Hemophilia Association of New Jersey (HANJ) weigh in on the topics of IDENTITY as someone with a bleeding disorder;…
Ep. 37: June 17, 2019 - w/ Amanda Bok
Jun 17 • 92 min
This month on The BloodStream Podcast, we breakdown “Clotting Factors: Aren’t They Basically All the Same?” from the May issue of the Parent Empowerment Newsletter (PEN), we discuss one physician’s social media crusade to tear down…
Ep. 36: May 20, 2019 - w/ Dr. Galen Cole
May 20 • 93 min
This month on The BloodStream Podcast we talk to Dr. Galen Cole about Cognitive Behavioral Therapy (CBT) and positive psychology, we hear Jeron Hill’s “My Personal Experience” story of living with hemophilia B, autism, and ADHD, and we discuss…
BloodStream Stories - Empowering Women - Part 3: Empowering Women
Apr 22 • 21 min
Empowerment isn’t something that appears out of thin air - it’s a culmination, an evolution. Our third and final episode shows how bringing women together and believing their stories leads to empowerment, which these women then spread to their…
BloodStream Special Episode: World Hemophilia Day - April 17, 2019
Apr 16 • 23 min
It’s World Hemophilia Day and we’re honoring our commitment to raise awareness around the world! Ryan Gielen (Believe Limited, Creative Director/Co-Founder & Bloodstream Media, Co-founder) brings you this special episode of Bloodstream. He…
Ep. 35: April 15, 2019 - w/ Dr. Assad Haffar and Dr. Glenn Pierce
Apr 15 • 113 min
This month on The BloodStream Podcast we talk to Dr. Assad Haffar and Dr. Glenn Pierce from the World Federation of Hemophilia about World Hemophilia Day, we hear Molly Livingtone’s “Raising Kids with Hemophilia in Israel” story, Debbie de la…
BloodStream Stories - Empowering Women - Part 2: Believing Women
Apr 8 • 22 min
Far too often, women across the medical spectrum aren’t taken seriously by their doctors. This is particularly true within the bleeding and clotting disorders community. In this episode, we hear about the damage that’s done when women aren’t…
BloodStream Stories - Empowering Women - Part 1: Uniting Women
Apr 1 • 21 min
In 1999, an HTC outside Houston, TX created a retreat that focused exclusively on women with bleeding and clotting disorders in the Great Plains region. Twenty years later, it’s going stronger than ever. We start our 3-part series by exploring how…
Ep. 34: March 18, 2019 - w/ Robert C. Cooper
Mar 18 • 99 min
This month on The BloodStream Podcast we discuss the questions to ask if you are considering participating in a clinical trial and how the US is struggling to think about gene therapy and rare disease drug pricing. Jonathan Hill shares his “A Long…
Ep. 33: February 18, 2019 - w/ Katy Wright-Mead
Feb 18 • 84 min
This month on The BloodStream Podcast, we discuss “KonMari-ing” your social media timeline and the case for the controversial gene editing technology CRISPR. We hear from entrepreneur Jimi Olgahere on overcoming sickle cell disease with sickle…
Ep. 32: January 21, 2019 - w/ Amy Board
Jan 21 • 83 min
This month on The BloodStream Podcast, Clive Smith and the UK Haemophilia Society provide an update on the inquiry into the UK’s Contaminated Blood Scandal, Amy Board joins to discuss her new role with Ask The Expert and Believe Limited, Natalie…
Ep. 31: December 17, 2018 - Year in Review
Dec 17, 2018 • 41 min
This month on The BloodStream Podcast, Natalie brings you a 2018 year in review, highlighting some of BloodStream’s greatest moments from the past year. All that- plus Believe Limited’s creative director Ryan Gielen hosts an interview with…
Ep. 30: November 19, 2018 - NEHA FallFest 2018
Nov 18, 2018 • 67 min
This month on The BloodStream Podcast, Patrick brings you to New England Hemophilia Association’s (NEHA) FallFest to learn about “Current and Emerging Therapies in Hemophilia Care,” and to highlight presentations on the Teen Impact Awards, Stop…
Ep. 29: October 22, 2018 - at NHF’s 70th Annual Bleeding Disorders Conference
Oct 22, 2018 • 131 min
This month on The BloodStream Podcast, Natalie records from the National Hemophilia Foundation’s 70th Annual Bleeding Disorders Conference, bringing highlights, small interviews and generally providing the flavor of this year’s annual meeting. In…
Ep. 28: September 17, 2018 - w/ Val Bias and Dawn Rotellini
Sep 17, 2018 • 70 min
This month on The BloodStream Podcast, the National Hemophilia Foundation’s (NHF) CEO Val Bias and SVP Dawn Rotellini preview NHF’s 70th Annual Bleeding Disorders Conference taking place October 11th-13th in Orlando, Florida. UK Haemophilia…
Ep. 27: August 20, 2018 - w/ Wheels for the World
Aug 20, 2018 • 69 min
This month on The BloodStream Podcast, Shari Luckey shares her “Living in the Shadows with Mild Hemophilia” story, Natalie presents an article on the things you need to know before purchasing CBD oil, we bring to you updates on the legal…
Ep. 26: July 16, 2018 - w/ Rebecca Haber
Jul 16, 2018 • 71 min
This month on The BloodStream Podcast, community member Lidia Ruiz shares her “An Unexpected Blessing” story, Natalie presents an article on the Step Therapy bill headed to Rhode Island’s state house, we highlight ASH, ISTH, NHF, and WFH’s…
Ep. 25: June 18, 2018 - w/ Lisa Thibeault
Jun 18, 2018 • 68 min
This month on BloodStream, we review major takeaways from World Federation of Hemophilia’s 2018 World Congress, Dakota Rosenfelt shares his journey of life with hemophilia, and we speak with Lisa Thibeault, the nurse coordinator from the…
WFH World Congress - Day 5 Recap
May 24, 2018 • 15 min
Day 5 from WFH’s 2018 World Congress is in the books, as is the 2018 Congress itself! What a few days it’s been. We spend a few minutes reviewing today and capsuling the conference before saying goodbye from Glasgow! During this week long…
WFH World Congress - Day 4 Recap
May 23, 2018 • 29 min
Day 4 from WFH’s 2018 World Congress is in the books, and The BloodStream Podcast daily recap is ready! During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of…
WFH World Congress - Day 3 Recap
May 22, 2018 • 48 min
Special guest Laurence Woollard from the UK joins The BloodStream Podcast for Day 3 of the World Federation of Hemophilia’s World 2018 Congress! During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily…
WFH World Congress - Day 2 Recap
May 21, 2018 • 25 min
During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia’s World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018. Follow Along: #WFH2018…
Ep. 24: May 21, 2018 - w/ Jonathan James
May 20, 2018 • 65 min
This month on The BloodStream Podcast, Nabila Husseni from Gujarat, India shares her story of living with Factor V deficiency and championing women’s equality, Natalie presents a recent NBC story on the rise of depression, we discuss Takeda’s…
WFH World Congress - Day 1 Recap
May 20, 2018 • 16 min
During this week long special edition of The BloodStream Podcast, host Patrick James Lynch posts daily recaps of the World Federation of Hemophilia’s World Congress, held in Glasgow, Scotland from May 20th to May 24th, 2018. #WFH2018 Connect with…
Ep. 23: April 16, 2018 - w/ Bill Patsakos
Apr 16, 2018 • 68 min
This month on The BloodStream Podcast, Dr. Steven Pipe joins us to discuss Hemlibra, the recently reported patient deaths, and what this means for our community. FDNY Lieutenant, CVS pharmacist, and FEMA volunteer Bill Patsakos joins us to discuss…
Ep. 22: March 19, 2018 - w/ Molly Reeser
Mar 19, 2018 • 60 min
This month on The BloodStream Podcast, community member Kevin Krivosik shares his journey toward independence, Camp Casey Founder Molly Reeser joins us to share the camp’s mission and her inspiration for starting it, and we take a look a recent…
Ep. 21: February 19, 2018 - w/ Michael Hargett
Feb 19, 2018 • 73 min
This month on The BloodStream Podcast, we discuss how one executive director in China has creatively given hope, dignity and income to her patients, we take you through how to stay fit and healthy while travelling, and we introduce a brand new game…
Ep. 20: January 15, 2018 - w/ Susan Lynch
Jan 15, 2018 • 69 min
This month on The BloodStream Podcast, Shire and Roche are locked up in a legal dispute related to Hemlibra, what does this mean and will it impact patients’ ability to receive Hemlibra? We discuss in today’s Comment Segment. A New York Times…
Ep. 19: December 18, 2017 - w/ Val Bias
Dec 18, 2017 • 87 min
This month on The BloodStream Podcast, Hemlibra is FDA approved and the first non-factor replacement therapy to treat people with hemophilia A (and inhibitors) is now on the market, we’ll discuss that along with other major product development…
Ep. 18: November 20, 2017 - w/ Alex Borstein
Nov 19, 2017 • 77 min
This month on The BloodStream Podcast, we interview actress Alex Borstein who’s best known as the voice of Lois on “Family Guy.” Alex talks about her life as an entertainer, a symptomatic carrier and a hemo mom. In our Like Segment,…
BloodStream Stories Presents - The Factor Revolution: The Last 60 Years of Hemophilia Treatment - Episode 3: Safety, Vigilance and New Frontiers
Oct 23, 2017 • 31 min
BloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at…
Ep. 17: October 16, 2017 - w/ Dan Levy
Oct 16, 2017 • 82 min
This month on The BloodStream Podcast, we spotlight “Factor Revolution”, BloodStream Media’s new three-part series covering the history of treatment in hemophilia; Natalie takes us through the five things all new moms need in our Like Segment;…
BloodStream Stories Presents - The Factor Revolution: The Last 60 Years of Hemophilia Treatment - Episode 2: The Contamination Crisis
Oct 9, 2017 • 49 min
BloodStream Media is proud to present The Factor Revolution: The Last 60 Years in Hemophilia Treatment, a three-episode special series with over forty interviews from community members, doctors, experts and advocates. We take a deep look at…
BloodStream Stories Presents - The Factor Revolution: The Last 60 Years of Hemophilia Treatment - Episode 1: The Revolution Begins
Oct 2, 2017 • 28 min
BloodStream Media is proud to present The Factor Revolution. The last sixty years in hemophilia treatment, with over forty interviews from community members, doctors, and advocates. We take a deep look at the history of factor treatment in the 1950’s…
Ep. 16: September 18, 2017 - w/ Andy Slavitt
Sep 18, 2017 • 50 min
Andy Slavitt, the former head of Medicare, Medicaid, and the Affordable Care Act (ACA) under President Obama, joins us for a very special interview segment on the importance of the ACA for people with hemophilia. UK-based community advocate Laurence…
Ep. 15: August 21, 2017 - w/ Special Guests from NHF
Aug 21, 2017 • 51 min
We preview National Hemophilia Foundation’s (NHF) 2017 Annual Meeting! Interviews include NHF CEO Val Bias, NHF staff and volunteers. During our Like, Share, Comment segment, Natalie and I discuss a recent article profiling companies with notably…
Ep. 14: July 17, 2017 - w/ Special Guest Dr. Steven Pipe
Jul 17, 2017 • 66 min
On this episode, Dr. Steven Pipe- pediatric hematologist and Chair of the National Hemophilia Foundation’s (NHF) Medical and Scientific Advisory Council- provides an update on new and developing treatment products immediately following his attending…
Ep. 13: June 19, 2017 - w/ Special Guest Rob Bradford
Jun 18, 2017 • 78 min
Description: In this episode, Patrick & Natalie discuss a recent study highlighting the issue of patient aging, a story about a young Iowan with hemophilia whose healthcare costs recently made national waves, and the latest on the American Health…
Ep. 12: May 15, 2017 - Year In Review
May 14, 2017 • 67 min
In this episode, Patrick and the BloodStream team celebrate the first year of the BloodStream podcast! Patrick leads us through this “Year In Review” episode by bringing us your favorite sequences from the past year of episodes. Listen to…
Ep. 11: April 17, 2017 - World Hemophilia Day Special Episode
Apr 16, 2017 • 63 min
The BloodStream Podcast - Episode 11 - Program Notes Listen to Episode 11 by clicking the play button on the audio player above, or follow any of these links to listen and subscribe on your podcast player of choice…
Ep. 10: March 20, 2017 - w/ Special Guest Justin Levesque
Mar 20, 2017 • 79 min
Description: In this episode- it’s Bleeding Disorders Awareness Month! Patrick and Natalie discuss that, Washington Days, the landmark opening of the My Life, Our Future research repository, and more! Also, Australian community member Jenna…
Ep. 9: February 20th, 2017 - w/ Special Guest Jorge de la Riva
Feb 20, 2017 • 69 min
Description: In this episode, Patrick and Natalie review some advocacy best practices, take a look at the increasingly popular cryotherapy, share one mom’s (anonymous) story of addiction, hemophilia and family, and during the Sit-Down segment,…
Announcing two new podcasts from BloodStream Media!
Feb 12, 2017 • 6 min
Believe Limited is excited to announce the launch of not one but TWO new podcasts! Ask the Expert and The Powering Through Podcast join our flagship podcast BloodStream™ to round out the growing BloodStream…
Ep. 8: January 16th, 2017 - w/ NFL Super Bowl Champion Josh Gordy
Jan 16, 2017 • 58 min
In this episode, Patrick & Natalie review recent headlines of interest, introduce a patient perspective on life with sickle cell disease, discuss Believe Limited’s upcoming documentary about hemophiliac mountaineer Chris Bombardier’s summiting of…
Ep. 7: December 19th, 2016 - w/ special guests Jeremy Griffin, Rich Pezzillo, Michelle Kim & Bob Robinson
Dec 19, 2016 • 53 min
In this episode, Patrick reviews some recent headlines in our Trending Topics segment, shares some takeaways from the American Society of Hematology’s 2016 Annual Meeting during our Like, Share, Comment segment, and during a special Sit-Down…
Ep. 6: November 21st, 2016 w/ Ali Stroker
Nov 21, 2016 • 64 min
In Episode 6, Patrick introduces a new BloodStream co-host, touches on some headlines of interest in our Trending Topics segment, dives into what the recent election may mean for the bleeding disorders community in our Like, Share, Comment segment,…
Ep. 5: October 17th, 2016 - w/ Jeanne White-Ginder
Oct 17, 2016 • 65 min
In Episode 5, we take a look at recent community news during our Trending Topics Segment- including a new virtual reality game designed to help reduce kids’ anxiety during infusions and a new needle that won’t cause bleeding after it’s removed,…
Ep. 4: September 19th, 2016 - w/ Great Moments from PoweringThrough
Sep 19, 2016 • 61 min
The monthly news, updates, and interview podcast for the hemophilia and greater bleeding disorders community
Ep. 3: August 22nd, 2016 - w/ WFH Congress Soundbites
Aug 22, 2016 • 48 min
The monthly hemophilia and bleeding disorders podcast for news, interviews, and informed opinionating.
Ep. 2: July 18th, 2016 - w/ Chris Bombardier
Jul 18, 2016 • 52 min
Patrick talks with guest Chris Bombardier about his quest to climb the seven summits- the highest peak on each of the seven continents- while living with severe hemophilia B. This, plus news headlines & our “Like, Share, Comment” segment for July!…
Ep. 1: Bonus Content - Extended Interview w/ Glenn Pierce.
Jun 20, 2016 • 78 min
Listen to the full conversation w/ Dr. Glenn pierce in this piece of bonus content from Episode 1 of BloodStream.
Episode 1: June 20th, 2016 - w/ Glenn Pierce
Jun 20, 2016 • 44 min
In Episode 1, Patrick talks with guest Dr. Glenn Pierce about inhibitors, the new SIPPET study and the state of bleeding disorders around the world. This, plus our June “Likes, Comments, and Shares” featuring stories about notable upcoming conferences…