Polycythemia Vera: Vampires Would Love Her {Chronic Illness Podcast}
0:00 -:--
Speed
++++++
You Are Not Your DiagnosisWhat is your disorder? *polycythemia veraAt what age did your disorder become a daily issue? *25Who were you before your illness became debilitating? *I was a graduate student pursuing a career in academia but I was completely miserable on my path.What would you do if you were not dealing with your invisible illness? *I don’t know that I’d be doing much different other than maybe having a bit more energy in generalWhat would you like people to know about your daily life? *That through alternative healing methods, I’m able to live a normal life- one that I didn’t think was possible back when I was diagnosed in 2004 (which was actually a misdiagnosis)What would make living and moving in the world easier for you? *If doctors would understand the power of their words and their attitudes in how people get better or stay sick. If alternative healing was more embraced by people, especially doctorsDo you have any life hacks? *Tons. One of my favorites is self-care, especially something…