Heart to Heart with Anna

Heart to Heart with Anna

www.heartsunitetheglobe.org
“Heart to Heart with Anna” is the only radio show devoted to the congenital heart defect (CHD) community. Our shows feature Survivors, family members, medical professionals and others in the CHD community who wish to share their stories, expertise and


Gastrointestinal Issues and Feeding Tubes in the CHD Community (Remastered)
Nov 3 • 57 min
Heart Mom, Christie Saunders, and NoTube Clinical Psychologist, Sabine Marinschek, talk with Anna about how children with congenital heart defects can develop gastrointestinal issues and require feeding tubes and they share how these children can…
Getting to Know Keith Flynn: A Heart Transplant Hopeful!
Oct 29 • 30 min
Keith Flynn was born with a single ventricle heart and he shares with Anna what it has been like growing up with a congenital heart defect, how he has come to need a heart and liver transplant and what keeps him going despite living in congestive heart…
Texas Heart Mom and Daniel’s Lion Heart Founder – Staci Geiger!
Oct 22 • 28 min
On this episode of Heart to Heart with Anna​, Daniel’s Lion Heart Founder, Staci Geiger​, shares with Anna Jaworski​ how her heart journey began, what caused her to start a nonprofit organization and where that organization is headed in the future.
Care, Hope, Discover 2019 Conference: A Congenital Heart Defect Conference
Oct 15 • 28 min
Mary Kay Klein shares with Anna information about the October 26, 2019 congenital heart defect conference which will occur in Watlham, Massachusetts (outside of Boston) an which will feature experts in the field of congenital heart defects, panel…
Raising Awareness of Ivemark Syndrome
Oct 1 • 30 min
Tune in to hear Julia Mayfield’s inspirational story of living with Ivemark Syndrome, the advice she has for others and what she feels the world needs to know about Ivemark Syndrome.
When a Heart Warrior Is Living in Heart Failure
Sep 24 • 35 min
Aubyn Baker-Riley is a Heart Warrior who is living in heart failure and she shares with Anna how her medical journey took her to where she is today, what tests she is awaiting, and what her hopes for the future are.
5th Annual Adult Congenital Heart Symposium
Sep 17 • 46 min
Dr. C. Huie Lin talks with Anna about the adult congenital heart symposium hosted by Houston Methodist Hospital and informs the public about the benefits of attending the conference, who should attend, the cost and why this conference is changing the…
When You’re Married to a Heart Warrior
Sep 10 • 33 min
Megan and Matthew Tones share with Anna what it has been like to be a married couple dealing with congenital heart defects and some of the special considerations that need to be made to be happy and successful.
Living with a Bi-Directional Glenn Heart
Sep 3 • 32 min
When the norm is for a person with a single ventricle heart to have a Fontan procedure or a heart transplant, what happens to the people who aren’t good candidates for those option? Tune in to this program to find out how one woman has faced life and…
Congenital Heart Defect Awareness at Podcast Movement 2019
Aug 27 • 25 min
While at Podcast Movement 2019, Anna Jaworski met numerous people touched by congenital heart defects and she decided to interview some of them in this episode of “Heart to Heart with Anna.”
Behind the Scenes with Hearts Unite the Globe
Aug 20 • 30 min
Anna Jaworski is in a special studio at Podcast Movement 2019 with two other Hearts Unite the Globe (HUG) Board Members and the three of them dish about all things HUG, what they have learned at the conference, and what they believe the future holds in…
Interwoven Lives and Congenital Heart Defects
Aug 13 • 31 min
Dr. Brandon Lane Phillips shares information about his dream, as a child, of becoming a pediatric cardiologist despite having had open-heart surgery and suffering from a learning disability, as well as all of the people who have come in and out of his…
Travels of a Heart Warrior!
Aug 6 • 30 min
Tune in to hear how an experience world traveler, and Heart Warrior, have negotiated the tasks necessary to travel the world without incident thanks to some clever planning and best travel practices with today’s Guest, Megan Tones.
The Changing Landscape of Care for Young Adults with CCHDs
Jul 30 • 30 min
You won’t want to miss this episode where returning Guest, Vicki Lucas, talks about the changing landscape of care for adults with critical congenital heart defects and how her family has navigated the difficult journey of taking him from pediatric…
Hearts Unite the Globe’s Summer of 2019 Audio Newsletter
Jul 23 • 27 min
This is the first Hearts Unite the Globe (HUG) audio newsletter with information about upcoming retreats for Volunteers, conferences for the CHD and podcasting community, HUG’s Patreon account, the Tita Hutchens Award and Heart to Heart with Michael’s…
Silent Cries: Breaking Through CHD Awareness
Jul 16 • 28 min
Phillip Wolf, Nicole Vickery, and David Franco talk about the makings of a new documentary — Silent Cries: Breaking Through CHD Awareness and why everyone needs to watch this film when it debuts on August 6, 2019 on Amazon Prime Video.
Shameless Appeals for Applause: With A 66-Year Old ccTGA Heart Warrior
Jul 9 • 30 min
Ann Koplow is a blogger, musician and Heart Warrior who was born in the 1950s and she has survived with the help of a pacemaker for decades and has a lot of entertaining stories about how the field of pediatric cardiology has grown up with her.
From Learning Disabled to College Professor
Jul 2 • 31 min
Kathy Ware is a Heart Warrior who was labeled “learning disabled” as a child and she talks with Anna about how she overcame that label and worked hard to continue her education until she became a college professor herself!
A Connection between the Flu, Arthritis & Heart Disease: A Mother’s Instincts
Jun 25 • 29 min
Marie O’Donnell is a Heart Mom who believes in trusting her gut and she talks with Anna about her beliefs regarding her daughter’s experience after contracting flu A and developing rheumatoid arthritis.
Crunching Numbers for CHD Research
Jun 18 • 29 min
Antara Mondal is an adult with a congenital heart defect who talks to Anna about how her latest open-heart surgery helped her determine her college path and her current career giving back to the congenital heart community.
2019 Mended Little Hearts Symposium and Leadership Summit with Jodi Smith!
Jun 11 • 31 min
As the National Program Director for Mended Little Hearts, Jodi Smith has the inside track on the 2019 CHD Symposium and Leadership Summit which she shares with Anna; learn about the keynote speaker, the venue and the special activities they have planned…
Upbeat CHD Thriver, Author and Motivational Speaker, Beth Greenaway!
Jun 4 • 29 min
Beth Greenaway returns to Heart to Heart with Anna to talk about her new book and her medical journey.
Coronary Artery Disease in the CHD Community!
Apr 9 • 38 min
Dr. Fred Wu, a specialist in the care of adults with congenital heart defects, shares with Anna what the risk factors are for those adults regarding acquired heart disease such as coronary artery disease.
Pediatric Cardiologist, Researcher, Mentor & Podcaster!
Apr 2 • 34 min
Today’s episode features an electrophysiologist specializing in the care of people with congenital heart defects who has started his own podcast to help his colleagues.
Telemedicine and Patients with Congenital Heart Defects
Mar 26 • 30 min
Dr. Ami Bhatt is a cardiologist specializing in the care of adults with congenital heart defects and in this episode she shares with Anna an up-and-coming method of caring for busy patients with the use of telemedicine.
A Conversation with a Psychologist born with a Congenital Heart Defect
Mar 19 • 30 min
Dr. Liza Morton returns for a second interview with Anna but this time, she also responds to al live, studio audience as she answers their questions about how they can use the polyvagal theory to help them process their own health journeys, how PTSD can…
An Embodied Understanding of Living with a CHD
Mar 12 • 33 min
As a Heart Warrior, Dr. Liza Morton is in a unique position to understand how living with a chronic illness can psychologically affect a person and she shares with Anna how that situation even led to her choosing psychology as a profession.
Helping Our Children Become Their Own Best Advocates
Mar 5 • 26 min
Lisa Rodebaugh is Heart Mom to a son born with hypoplastic left heart syndrome and she discusses how she helped him transition to adulthood and being responsible for his healthcare and himself.
Nutritional Considerations for the Congenital Heart Defect Community
Feb 26 • 42 min
Skylar Griggs, a dietician from Boston Children’s Hospital, shares with Anna dietary concerns for those born with congenital heart defects.
Lessons Learned by a Long-Time Heart Mom
Feb 19 • 30 min
As the mother of a son over 50 years of age who was born with a serious congenital heart defect known as L-TGA, Roseann Franco shares with Anna lessons she has learned while giving advice to parents of children born with heart defects today.
A Family of Faith
Feb 12 • 29 min
Roseann Franco is the mother of an adult with a congenital heart defect who was born in the 1960s and she shares her amazing story of how David was born and his heart defect was identified, as well as, her family history of heart problems.
Championship Hearts Foundation 2019 Heartbeats & Heroes Gala
Feb 5 • 31 min
In this episode Host Anna Jaworski talks with representatives from Championship Hearts Foundation about their upcoming gala, their mission and how people can get a free heart screening for their teens in Austin, Texas.
Thriving with CHD
Jan 29 • 33 min
This episode features a Heart Warrior who has faced unique medical challenges yet has a fantastic outlook on life.
Finding a New Direction Through Adversity, a Mother and Son’s Story
Jan 22 • 34 min
Monica and David Sanford, a dynamic mother-son duo, talk with Anna about the adversities they have had to overcome in dealing with congenital heart defects and hemifacial microsomia and how they have become stronger than ever in the reckoning!
Healing the Hearts of Croatia, Libya, Ecuador and Beyond
Jan 15 • 30 min
Dr. William Novick talks with Anna about how and why he created the Novick Cardiac Alliance, what their mission is, who is part of the team and what they are doing to heal broken hearts around the world.
Heart Mom to a Son with VACTERL Association
Jan 8 • 34 min
Aubrey Byrnes talks to Anna about what VACTERL Association is, what kind of heart defects and other birth defects are commonly present in this rare disease and how it has affected her life.
Making a Difference Thanks to Gabe
Jan 1 • 40 min
Anita Moreno Marcelo, mom to a son with a critical congenital heart defect talks with Anna about what it was like to lose a son and ways we, as a heart community, can work to lessen the pain and suffering of our loved ones in congestive heart failure.
Making Memories Everyday with our CHD Families (Remastered)
Dec 25, 2018 • 53 min
This special episode features 3 Heart Moms talking about how they make everyday special for their Heart Warriors and entire family due to living with critical congenital heart defects and understanding the importance of celebrating and never taking time…
Working Dads versus Stay-at-Home Dads (Remastered)
Dec 18, 2018 • 52 min
Fathers of children with congenital heart defects face the same concerns mothers do when it comes to staying home with a medically fragile child or returning to work and two Heart Dads tackle this difficult topic in today’s program.
Babysitting and Daycare for CHD Survivors (Remastered)
Dec 11, 2018 • 60 min
Three Heart Moms discuss their decisions regarding childcare after having a child with a critical congenital heart defect and share advice for others who must decide how to care for their own Heart Warriors.
Breastfeeding your CHD Baby (Remastered)
Dec 4, 2018 • 57 min
Breastfeeding a baby is a natural event that few people need to think about but that isn’t the case when a baby is born with a heart defect; however, two Heart Moms and a breastfeeding expert talk about how having a baby with a heart defect can affect…
Sports and Boys with Critical CHDs (Remastered)
Nov 27, 2018 • 48 min
Two Heart Dads and a Heart Warrior discuss how advice and expectations for boys born with critical congenital heart defects regarding participation has changed in the last twenty years.
Rainbow Babies: Pregnancy After Losing a Child to a CHD (Remastered)
Nov 20, 2018 • 53 min
In this episode Ashley Halligan and Sheri Turner discuss the sadness of losing a child to a congenital heart defect and their wishes and experiences with wanting and having rainbow children.
Congenital Heart Defect Advocacy (Remastered)
Nov 13, 2018 • 45 min
Advocacy in the congenital heart defect community can take many forms and our three Guests share their experiences with us in this episode.
What is Normal Child Development in Children with Complex Congenital Heart Defects? (Remastered)
Nov 6, 2018 • 51 min
Children needing open-heart surgery in the first year of life usually have some developmental delays and today’s Guests share with us what common delays are, how to help our children with critical congenital heart defects and when it might be appropriate…
Non-Cardiac Health Issues for Survivors with Complex Congenital Heart Defects (Remastered)
Oct 30, 2018 • 48 min
Today’s episode features a Heart Warrior who shares her experiences with us on having some non-cardiac health issues while Heart Dad, David Simpson, talks to Anna about protein-losing enteropathy and Dr. Amy Roberts discusses potential genetic…
Snowflakes: How Each Heart is Unique (Remastered)
Oct 23, 2018 • 46 min
Kristi Peña, Dr. Gerald Marx, and Cindy Weston talk with Anna about how each heart is unique and how congenital heart defects affect hearts differently, including a great description by Dr. Marx on the tools he uses as a cardiologist to diagnose and treat…
Cora’s Law & Why It’s Important (Remastered)
Oct 16, 2018 • 48 min
This episode feature three heart moms and one senator who all share their stories about how pulse oximetry for newborn screening of congenital heart defects has touched their lives.
Genetics in the Congenital Heart Defect Community (Remastered)
Oct 9, 2018 • 48 min
This episode features two geneticists and two individuals who have been touched by genetic heart defects; they come together on this program to discuss their own personal experiences with CHDs and how the field of genetics has changed in the field of…
Heart Transplant Recipient and World Traveler, Jordan D. Marcia!
Oct 2, 2018 • 25 min
Guest Host, Megan Tones, and Guest Jordan D. Marcia discuss their experiences regarding travel considering they were both born with congenital heart defects and Jordan has even had a heart transplant; they share great tips and advice with the heart…
Surviving Plastic Bronchitis Thanks to a Heart Transplant
Sep 25, 2018 • 20 min
Jordan D. Marcia has an amazing story of triumph over adversity from being born with a critical congenital heart defect to developing plastic bronchitis, surviving a potentially life-threatening illness thanks to transplantation only to contract another…
Thankful for the LVAD Bridge to Transplant
Sep 18, 2018 • 28 min
Vikas Mahajan shares with Anna his journey with being born with a genetic defect that caused his heart to weaken over time eventually requiring a lot of medical intervention and then a heart transplant.
An Interview with The Transplant Helper, Jim Murrell!
Sep 11, 2018 • 37 min
Jim Murrell, better known as “The Transplant Helper,” tells Anna about his transplant journey, gives advice to others and explains why he started his YouTube program.
Life Thanks to the Berlin Heart Prior to Transplant
Sep 4, 2018 • 35 min
Melanie Slavinski discusses her son Xavier’s complicated medical journey from birth to transplantation and then re-transplantation with the assistance of a Berlin Heart.
Transplant Recipient Debunks Myths about Transplants
Aug 28, 2018 • 32 min
Chuck Estrada, born with transposition of the great arteries, went on to become a professional soccer player but required a heart transplant 39 years later and today he debunks some common myths about heart transplantation.
Heart Transplantation Due to Protein-Losing Enteropathy
Aug 21, 2018 • 36 min
This week’s show features Shannon Arriaga who talks with Anna about her son’s potentially life-threatening condition — protein-losing enteropathy — a condition (also known as PLE) that affects some people who have problems processing protein and, without…
Transplant Sisters: When a Family Faces Heart and Kidney Transplant Issues
Aug 14, 2018 • 42 min
Sisters, Amy Cowin and Jessica Carmel Cowin, discuss with Anna what it’s been like growing up dealing with a critical congenital heart defect where a failing Fontan procedure resulted in Jessica needing a heart transplant and they even detail additional…
Quality of Life Versus Quantity of Life: Decisions Regarding End of Life Care
Aug 7, 2018 • 38 min
David Franco shared with Anna his experience in living with cc-TGA (a congenital heart defect) and how, now that he’s 51 years old, he is experiencing more problems which are leading him to analyze his end-of-life care.
When a Baby Needs a Heart Transplant
Jul 31, 2018 • 28 min
Dana Henning shares with Anna what it was like to have a baby with a critical congenital heart defect which required transplantation after the initial surgical intervention was unsuccessful.
Multiple Organ Transplant Due to Gastric-Intestinal Pseudo-Obstruction
Jul 24, 2018 • 31 min
Darryl Wallis has an extremely rare genetic mutation which required multiple organs to be transplanted at once in order for him to survive since his body was unable to process food properly and he shares his story with us in this episode.
Still Waiting for a Heart
Jul 17, 2018 • 27 min
Christiana Whallon’s daughter Jaylee was born with hypoplastic left heart syndrome which required her to wait for a heart transplant … which didn’t come in time.
Michael & Jamie: An Interview with an Organ Recipient and a Donor’s Father
Jul 10, 2018 • 25 min
Discover how “The Phoenix Rises” — how one person’s death has meant life for others. Michael Liben shares how his daughter’s death resulted in life for others. Jamie Alcroft shares how the gift of a liver and a heart has meant life for him.
Receiving the Gifts of a Liver and a Heart
Jul 3, 2018 • 34 min
Comedian, Voice-Over Artist and Actor, Jamie Alcroft, shares with Anna his experience of needing a heart and liver transplant, the journey to receive those organs and the book he’s written detailing that journey called “The Tinman Diaries.”
Liel and her Many Gifts: A Family’s Decision to Donate One Girl’s Lungs, Kidneys, and more!
Jun 26, 2018 • 28 min
Today’s episode deals with organ donation after a child dies unexpected from epilepsy and the family’s decision to donate the girl’s organs to help others.
Saving Hearts in Pakistan
Jun 19, 2018 • 30 min
Farhan Ahmad, the father of a child with a congenital heart defect and founder of the Pakistan Children’s Heart Foundation, shares with Anna what the nonprofit organization has done and hopes to do in the future.
Una Madre en Misión
Jun 12, 2018 • 23 min
¿De qué manera tener un hijo con HLHS alienta a una madre a involucrarse en la defensa? ¿Cómo se siente acerca de involucrar a su familia en la lucha? ¿Qué hizo que esta mamá encontrara la forma de que se escuchara su voz?
Mom on a Mission
Jun 5, 2018 • 30 min
Jennifer Iguina is the mother of a child with a congenital heart defect. Tune in as Jennifer explains how her son’s heart defect has inspired her to become an advocate for CHDs and how it’s also affected her entire family.
לגדול עם אחות בעלת צרכים מיוחדים
May 15, 2018 • 29 min
עידן וספיר גדלו עם אחותם, ליאל, בעלת צרכים מיוחדים. לליאל היה מום לב, אוטיזם ואפילפסיה. עידן וספיר מספרים איך היה לגדול איתה בבית ומשתפים בסיפורים על האתגרים לגדול עם ליאל. הם מגלים כיצד הועשרו חייהם בזכותה.
Growing Up with a Special Needs Sister (in English and Hebrew!)
May 15, 2018 • 30 min
Idan and Sapir Liben return to talk more in-depth with Anna about what it means to grow up with a sister with a congenital heart defect and autism. They share stories about her unique behaviors and how she has enhanced their lives in many ways.
A Dutch Mother’s Experience with Congenital Heart Defects
May 8, 2018 • 31 min
Pien Witjmans is a Dutch mother living in the USA with a child with transposition of the great vessels and she shares her story and experiences with us today.
Een Nederlandse Moeder’s Ervaring met een Kind met een Aangeboren Hartafwijking
May 8, 2018 • 27 min
Een Nederlandse vrouw verhuist naar Amerika en haar derde kind heeft een aangeboren hartafwijking. Zij vertelt over haar ervaringen gedurende de geboorte, operaties en andere uitdagingen waar zij mee te kampen heeft.
Siblings of a Sister with Special Needs
Apr 10, 2018 • 33 min
Sapir and Idan Liben talk with Anna about what it was like growing up with a sister with double outlet right ventricle, autism and eventually epilepsy and what life is like now that she’s gone.
Brothers of a Heart Warrior Sister
Apr 3, 2018 • 30 min
Ryan Celeskey is the older brother of Lauren, a sister with a critical congenital heart defect, and Aaron Celeskey is the younger brother and they talk with Anna about what it was like to grow up with a sister with a chronic illness.
Rainbow Baby Brother: Life After the Loss of a Sibling
Mar 27, 2018 • 27 min
Brandon Gilmore talks with Anna about what it was like to be raised as a Rainbow Baby and what life has been like without his brother, Matthew.
Heart Sister, CHD Advocate and Heart Mom
Mar 20, 2018 • 33 min
Join us for this podcast featuring a big sister whose baby sister was born with a congenital heart defect and who learned how to turn her anger into advocacy which is a good thing because she later became the mother of a child with a heart defect herself!
My Heart Brother & Best Friend
Mar 13, 2018 • 27 min
Usman Shahid shares with Anna what it was like to grow up with a brother with tetralogy of Fallot and a sister with CHARGE Syndrome as he tells stories and shares advice.
Growing Up with a Heart Warrior Brother
Mar 6, 2018 • 30 min
Listen to hear how Daniel Sajdak feels his parents did raising his siblings and him considering one had a critical congenital heart defect now that he is a father himself.
A Special Bond between Sisters
Feb 27, 2018 • 31 min
Amy Cowin is sister to Heart Warrior Jessica and she shares her story about her sister’s need for a kidney and Amy’s decision to donate her kidney and how that has affected her life.
Heart Sister to Heart Sister
Feb 6, 2018 • 30 min
As an only child, Katie Hunt often longed for a sister but never would have guessed that Amanda would not only fill that role but also become an angel who saved her family’s lives.
Big Sister to a CHD Warrior: Time Together, Time Away
Jan 30, 2018 • 31 min
Heart Warrior David Franco’s older sister Roseann Franco Bischoff shares what it was like growing up with a chronically ill brother and how her experiences helped her when she became a mother.
Brother of an HLHS Warrior
Jan 23, 2018 • 31 min
Joey Jaworski is 3 years older than his brother Alex who was born with HLHS and today he shares how having a brother with a chronic illness affected his life.
Heart Sister Now and Forever
Jan 16, 2018 • 27 min
Ayrton Beatty is sister to Edward, who had an undiagnosed congenital heart defect and she shares with us what it was like growing up and losing Edward.
Heart Sister, Heart Warrior and Heart Mom!
Jan 9, 2018 • 30 min
Steffe Becker share with Anna about what it was like to grow up with a heart defect and with a brother who had a heart defect and what life has been like having a twin also affected by a heart defect.
Siblings of a Truncus Arteriosus Sister
Jan 2, 2018 • 30 min
Jessica and Jay Weiner are siblings to Jennifer — who was born with truncus arteriosus which is a critical congenital heart defect and they share what it was like growing up with a sibling with a chronic illness.
Cardiac Athlete™ Spotlight: Olympic Athlete Paul Wylie
Dec 26, 2017 • 23 min
Olympic athlete Paul Wylie had no idea he had a congenital heart defect but that unknown problem almost cost him his life; he shares his experiences and his advice with Anna today.
Cardiac Athlete™ Spotlight: Beth Greenaway
Dec 19, 2017 • 24 min
Beth Greenaway shares a story of the danger of being lost to follow-up medical care after having open-heart surgery to correct a congenital heart defect and how she fought back to regain her ability to be an athlete.
Cardiac Athlete™ Spotlight: Greg Bassett
Dec 12, 2017 • 19 min
Greg Bassett is a Cardiac Athlete™ who discovered when getting a routine physical that he had a heart condition requiring open-heart surgery and he shares that experience with us today.
Cardiac Athlete™ Spotlight: Ed Rucci
Dec 5, 2017 • 15 min
Today Ed shares with Anna what it was like to have a heart attack while bike riding, what he believes the culprit was and how he’s made changes in his lifestyle to be healthy.
Cardiac Athlete™ Spotlight: Graeme Sutton
Nov 28, 2017 • 20 min
Join us today as we chat with a man who on his 50th birthday discovered he had a potentially life-threatening congenital heart defect requiring open-heart surgery to repair it and the challenges he’s faced as an athlete.
Cardiac Athlete™ Spotlight: Roger Potter
Nov 21, 2017 • 15 min
Roger Potter, a former “blue baby,” shares with Anna about what it was like to be born in the 1940s with a patent ductus arteriosus and how his life was affected by growing up with that congenital heart defect.
Cardiac Athlete™ Spotlight: Neil Collins
Nov 14, 2017 • 16 min
Neil Collins is another Cardiac Athlete™ and he shares his story of growing up with a bicuspid aortic valve and the surgery he needed to repair it, as well as how he is once again competing and back at work.
Cardiac Athlete™ Spotlight: Aimee Osinski
Nov 7, 2017 • 19 min
Aimee Osinski was an athlete who couldn’t seem to improve and that’s when she discovered she had a potentially fatal heart defect which was corrected and she’s now a more competitive athlete than ever before!
Cardiac Athlete™ Spotlight: Martin Brady
Oct 31, 2017 • 22 min
Martin Brady is a Cardiac Athlete™ who discovered he had a bicuspid aortic valve but, thanks to surgery and rehabilitation has been able to regain the ability to run again.
Cardiac Athlete™ Spotlight: Michael Montgomery
Oct 24, 2017 • 17 min
Michael Montgomery, Green Bay Packer #96, was born with a potentially life-threatening congenital heart defect called Wolff-Parkinson-White Syndrome and he talks with Anna about discovering he had that condition, what had to be done about it and how he’s…
Cardiac Athlete™ Spotlight: Tracie Happel
Oct 17, 2017 • 19 min
Tracie Happel is a Cardiac Athlete™ who suffers from High Grade AV Block, Type III intermittent causing her to suffer for years before she received the proper diagnosis but now she helps to inform others about her condition and how you can still be an…
Cardiac Athlete™ Spotlight: Richard Gardner
Oct 10, 2017 • 15 min
Richard Gardner shares with us what it was like to discover he had a congenital heart defect later in life, how it changed his life and what he believes people can do despite having broken hearts.
Cardiac Athlete™ Spotlight: Barry Stone
Oct 3, 2017 • 14 min
Living life to the fullest as a septuagenarian, Barry Stone details with Anna what it was like to have two different cardiac episodes and procedures and how he’s still a Cardiac Athlete™ today.
Cardiac Athlete™ Spotlight: Benjamin Lee
Sep 26, 2017 • 19 min
Benjamin Lee is a Cardiac Athlete™ who is also a preacher, an author and a motivational speaker who almost died from his heart defect and who now educates others about hypertrophic cardiomyopathy.
Cardiac Athlete™ Spotlight: Lisa Johnson
Sep 19, 2017 • 19 min
Lisa Johnson is a Cardiac Athlete who has experienced misdiagnosis of a congenital heart defect which has led to the development of an autoimmune disease however she is overcoming adversity to remain an athlete.
Cardiac Athlete™ Spotlight: Tim Howard
Sep 12, 2017 • 15 min
Tim Howard is Cardiac Athlete™ who has overcome a cardiac arrest and he shares his story of overcoming adversity to become the athlete he wants to be.
Progrès dans la compréhension du foie chez les Patients de Fontan
Sep 5, 2017 • 27 min
This is our first Heart to Heart with Anna episode entirely in French for our French-speaking Heart Community. Today’s topic deals with the Fontan heart and liver involvement. La procédure de Fontan a été utilisée depuis les années 1970 pour traiter…
Discovering Hidden Talents in our Heart Warriors
Aug 29, 2017 • 32 min
Today Jessica Gutierrez-Rodriguez talks with us about how she has discovered her single-ventricle heart warrior’s hidden talents. She also shares with us Marianne’s early years and some of the challenges she’s had to overcome. Jessica shares how she ha…
Educating Twin Heart Warrior Toddlers
Aug 22, 2017 • 29 min
The importance of early childhood education (ECI) cannot be denied. At-risk children who are given ECI tend to do better and many can even start kindergarden with their peers. Today’s program features Roxanne Montalvo-Tsai, a heart mom to a healthy lit…
You’re Never Too Old to Dream a New Dream: Education for Heart Parents
Aug 15, 2017 • 33 min
For many parents, after they have a child with a critical congenital heart defect their world completely stops for a time. Some parents become paralyzed with fear. They are afraid to move forward because while pursuing their own dreams, their baby coul…
Special Education Accommodation and Individualized Health Care Plans
Aug 8, 2017 • 33 min
It’s back-to-school time and “Heart to Heart with Anna” wants to make sure that Heart Parents are prepared to send their Heart Warriors back to school! Enjoy today’s program with Lisa O’Connor, a special education advocate. Lisa shares with Anna some o…
Moving From High School to Adulthood
Aug 1, 2017 • 30 min
What happens when our Heart Warriors age out of high school but are not ready for college or trade school? What can parents do to prepare their children for adulthood when cognitively they may not be where their peers are? Join us today as Kathy Keller…
One Heart Warrior’s Educational Experience Down Under
Jul 25, 2017 • 31 min
Season 10 of Heart to Heart with Anna is focused on educational issues but almost all of the programs have dealt with Heart Warriors in the United States. Join us with this program as we go Down Under to talk with an Australian Heart Warrior and what s…
The Faces of Special Education
Jul 18, 2017 • 32 min
Join us in this episode as we investigate a world filled with acronyms and letters (504 Plans, IEPs, ARDs). Special Education Instructor and Heart Mom Marie O’Donnell demystifies the world of special education as she explains what different kind of spe…
Homeschooling and Self-Advocacy
Jul 11, 2017 • 31 min
The number of families in the United States and around the world who are choosing to homeschool seems to be on the rise. There are a number of countries where it is illegal to homeschool but in the countries where it is not illegal, it is a viable opti…
Learning about the Function of the Heart
Jul 4, 2017 • 33 min
What happens when you expect a perfectly healthy baby but after delivery you discover your baby has a heart defect — one that will require open-heart-surgery to fix? How can ordinary parents learn about the function of the heart? What should they teac…
Special Education Transitions for Heart Warriors
Jun 27, 2017 • 33 min
It is a commonly known fact in the congenital heart defect (CHD) community that now there are more adults alive with CHDs than babies being born. That means we have more people reaching adulthood than ever before and that means that more people than ev…
Continuing Education Through Conferences and Support Groups
Jun 20, 2017 • 30 min
This season we’re focusing on education for Heart Warriors and today’s show exemplifies how learning is a life-long process. Today’s show deals not only with how Heart Warriors can continue their eduation about congenital heart defects (CHDs), but how …
Homeschooling a Special Needs Heart Warrior
Jun 13, 2017 • 31 min
The United States Department of Education reports that homeschooling continues to grow with an estimated 1,770,000 homeschooled students in 2013. That is 3.4% of the school-aged population! This is an increase of 61.8% over the previous ten years. Ther…
How Military Families Deal with Having a Child with a CHD (Encore Presentation)
Jun 6, 2017 • 57 min
Military families lead a very different life than civilian families do. Military families come from all walks of life and, when their children are diagnosed with heart defects, the challenges can vary according to location, branch of service, and of co…
Physical Education for Heart Warriors
May 30, 2017 • 30 min
Many years ago, when people were diagnosed with congenital heart defects, their doctors warned parents about the dangers of allowing their children to cry, to become upset or to exert themselves. What have doctors learned from those early pioneers in t…
Encore Presentation of Cardiac Athletes: Beating Heart Disease Around the World
May 23, 2017 • 32 min
Cardiac athletes are all around us. There are athletes who develop heart problems or who discover, after they have been athletes for a while, that there heart has some imperfections that may require surgery and there are people who were born with heart…
Strokes and TIAs in the CHD Patient
May 16, 2017 • 28 min
People who are born with congenital heart defects (CHDs) are at greater risk for having a TIA (mini-stroke or transient ishcemic attack) or stroke. A stroke occurs when there is bleeding into the brain (hemorrhagic stroke) or a blood clot blocking bloo…
The Emotional Toll of Living with Congenital Heart Disease
May 9, 2017 • 31 min
Today’s podcast deals with a topic that all Heart Parents know all too well — the emotional impact of having a child with a congenital heart defect. Our expert Guest, Yarrow Gillis, talks candidly with Anna about what it’s like to have a child born wi…
A Heart Warrior’s Early Onset Menopause
May 2, 2017 • 27 min
Now that more Heart Warriors are surviving to adulthood than ever before, there is a growing cohort of individuals actually entering middle age. So for the first time ever, there is a group of female Heart Warriors who are actually experiencing the con…
Heart Warrior Mom Raising Children to Adulthood
Apr 25, 2017 • 29 min
Guest Host, Rita Scoggins, interviews Heart Warrior, Laura Ryan, today about what it was like to raise two children. Laura Ryan is a congenitally corrected transposition of the great arteries and DILV (or double inlet left ventricle) Heart Warrior. Rit…
A View From the Other Side of the Bed
Apr 11, 2017 • 28 min
Today’s show features two Heart Warriors — Guest Host Carol Raimondi and Guest Roslyn Rivera. Both of these Heart Warriors decided to go into nursing. Tune in to hear why Carol (a cc-TGA Heart Warrior) and Roslyn (an partial atrio-ventricular septal d…
Advancements in Pulmonary Hypertension
Apr 4, 2017 • 30 min
Dr. Wayne Franklin discusses how pulmonary arterial hypertension (PAH) can present itself in patients with congenital heart defects (CHDs), what medications might help adults and the challenges in finding ways to help children with CHDs and PAH.
Advancements in Stem Cell Therapies and Research for HLHS Heart Warriors
Mar 28, 2017 • 37 min
Dr. Timothy Nelson is the director of the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic. Dr. Nelson and his team are specifically interested in the cause of hypoplastic left heart syndrome (HLHS) and finding ways to delay and prevent hear…
Advancements in Treatments for HLHS Heart Warriors
Mar 21, 2017 • 34 min
Hypoplastic left heart syndrome (HLHS) is a critical congenital heart defect — meaning that surgery within the first year of life is necessary to survive. Several decades ago, HLHS was uniformly fatal (except in some very rare cases) and most infants …
Advancements in Pregnancy for Congenital Heart Defect Survivors
Mar 7, 2017 • 30 min
Dr. Peter Ermis, of Texas Children’s Hospital, talks with Anna about the options for women born with congenital heart defects regarding family planning.
The Advancements of Family-Centered Care
Feb 28, 2017 • 37 min
This episode features a nurse, and Heart Warrior, and her mother as they discuss with our Host, Anna Jaworski, what advancements they’ve seen in family-centered care in the congenital heart defect community.
Advancements in Electrophysiology
Feb 21, 2017 • 36 min
Wilson Lam is a board certified cardiologist who specializes in adult congenital cardiology and rhythm disorders. In this program Dr. Lam outlines the advancements which have been made in the field of electrophysiology. He shares with Anna the changes …
The Roadmap to Success For Complex CHD Survivors Part 2
Feb 14, 2017 • 33 min
Last week we met Dr. Gil Wernovsky, a renowed pediatric cardiologist who has dedicated 30 years to treating babies born with congenital heart defects. We talked about a new approach that he designed by working collaboratively with doctors, nurses and p…
The Roadmap to Success For Complex CHD Survivors Part 1
Feb 7, 2017 • 36 min
Renowned pediatric cardiologist, author and researcher Gil Wernovsky, M.D., shares his experiences and proposal for a new way to treat those born with complex congenital heart defects with Anna. He shares his holistic vision for treatment of this uniqu…
Advancements in Understanding the Liver in Fontan Patients Part 2
Jan 31, 2017 • 28 min
The Fontan Procedure has been used since the 1970s to treat people with a single ventricle physiology — also known as a univentricular heart. It has also been used in the last few decades to treat hypoplastic left heart syndrome (HLHS) or hypoplastic …
Advancements in Understanding the Liver in Fontan Patients Part 1
Jan 25, 2017 • 31 min
The Fontan Procedure has been used since the 1970s to treat people with a single ventricle physiology — also known as a univentricular heart. It has also been used in the last few decades to treat hypoplastic left heart syndrome (HLHS) or hypoplastic …
A Nurse’s Perspective: Changes in Care over the last 30 Years: Part 1
Jan 17, 2017 • 33 min
Deena Barber has been a nurse for over 30 years. Over that time she has seen many changes in care for those born with congenital heart defects (CHDs). Tune in today to hear her discuss some of the most impactful advancements that have led to a change i…
A Nurse’s Perspective: Changes in Care over the last 30 Years: Part 2
Jan 17, 2017 • 34 min
Deena Barber has been a nurse for over 30 years. Over that time she has seen many changes in care for those born with congenital heart defects (CHDs). Tune in today to hear her discuss some of the most impactful advancements that have led to a change i…
Stem Cells for an HLHS (hypoplastic left heart syndrome) Heart
Jan 3, 2017 • 29 min
Jennifer Gutman is the mother of a son born with hypoplastic left heart syndrome. In today’s show Jennifer talks with Anna about finding out about her son’s condition after having lost a sibling to the same condition 30 years earlier. She also shares h…
Encore Presentation of “This is NOT the Trip I Planned For!”
Oct 4, 2016 • 27 min
Chris Perez is a Heart Dad from North Carolina. His son Nolan was born in 2012 with Hypoplastic Left Heart Syndrome. For almost 3 years he’s written a blog called Half Heart. Whole Life: an HLHS Dad’s blog, where he lays out the life of a Heart Dad w…
Rerun of “Failure to Thrive : Oral Aversions & Nutrition for CHD Survivors”
Oct 4, 2016 • 62 min
One of the problems many of our CHD children suffer from is “Failure to Thrive” and because the children with critical congenital heart defects usually have surgery within the first days or months of their lives, they may develop oral aversion (very pr…
Encore Presentation of “Ruling the World … One Cookie at a Time”
Sep 27, 2016 • 28 min
Today’s episode of Heart to Heart with Anna features Guest Host, Chris Perez (a.k.a. the HLHS Dad) and shows how a heart mom - inspired by her daughter’s determination - has begun a successful small business. The guest for this exciting episode is Jes…
Compassion Fatigue: Silent Enemy, Soul Sickness
Sep 19, 2016 • 28 min
Is the stress of caring for a child with a serious medical condition wearing you down? Do you find yourself being snappy with others? Is negativity showing through? Tune in to hear Guest Host, Chris Perez (a.k.a. HLHS Dad) interview Daniel Miles, the …
Long-Term Consequences of a Fontan Physiology
Sep 19, 2016 • 32 min
The Fontan Procedure was first described in 1971 as a treatment for tricuspid atresia. In the last 45 years, the Fontan Procedure has grown and changed and is currently used to save the lives of people born with a number of single ventricle diagnoses -…
Rethinking Transition Care for CHD Survivors
Sep 18, 2016 • 34 min
When teens become young adults, so many changes occur. For teens with congenital heart defects (CHDs), the changes that occur are often magnified. With the changes that happen in the body as children become adults, there are other changes that happen, …
Transitioning from Teen to Adult
Sep 6, 2016 • 30 min
How does a teen with congenital heart defect transition to being an adult with a congenital heart defect? What can go wrong? What kinds of things can parents do to help the transition go more smoothly? What makes transitioning so difficult? Two adults …
Insurance Issues and Financial Planning in the Congenital Heart Defect Community
Sep 6, 2016 • 36 min
Do you wonder what a financial planner does and if you can even afford one? Can you afford NOT to have one? What kind of emotional issues are common with chronic illness? How can anyone afford to have congenital heart disease and anything else happen t…
The Road Forward in ACHD Research: Where We Are Now and Where We Need to Be
Sep 6, 2016 • 32 min
Dr. Ari Cedars is a cardiologist at Baylor University medical Center in Dallas, Texas. He is a physician and the director of the Center for Adults with Congenital Heart Disease (or ACHD). He trained in Adult Congenital Heart Disease at Washington Unive…
Growing up with an ACHD Parent
Sep 6, 2016 • 28 min
Misty Castaneda was born with a heart defect known as tetralogy of Fallot. Told she’d never be able to have children, she was surprised at 19 to discover she was pregnant. Now, 19 years later, Misty has a 19-year-old daughter of her own. Misty has und…
The Natural Course of Congenital Heart Defects
Sep 6, 2016 • 30 min
What is the natural course of congenital heart disease? What obstacles do adult congenital heart defects Survivors (ACHDers) faces as they age? What transition challenges do ACHDers have to deal with? As Nurse Program Coordinator of the Akron Children’…
Adult CHD Survivors with Neurological Problems
Jul 25, 2016 • 31 min
Due to the complexity of the surgeries needed to help people with complex congenital heart defects, it is not uncommon for some survivors to suffer some neurological insults resulting in cognitive delays or even permanent neurological damage. How do pa…
Difficulties Growing Up with a CHD
Jul 5, 2016 • 30 min
What is it like to grow up with critical congenital heart defects requiring surgery in the first year of life? How does having multiple surgeries through a person’s life affect their career choices? How are two amazing adult survivors giving back?
Considerations for Non-Cardiac Surgeries for Adults with CHDs
Jun 28, 2016 • 31 min
David Franco was born with congenitally-corrected transposition of the great arteries and a ventricular septal defect (or VSD). David is 49 years old and has had several cardiac and several other, non-cardiac surgeries. In this episode of “Heart to Hea…
What’s New with Anticoagulants?
Jun 21, 2016 • 32 min
What’s new with anticoagulants? What should adults with congenital heart defects know about anticoagulants? What should adults with CHDs know about Coumadin? Pharmacist Rebekah Brunell shares her knowledge about anticoagulants with us and what new dru…
When CHDs Are Diagnosed After Infancy
Jun 14, 2016 • 30 min
How can a coarctation of the aorta affect a person’s life? What happens to a person when their congenital heart defect, once dormant, suddenly becomes an issue? How does an adult deal with the intrusion of a birth defect after living a normal life? Tun…
Taking Charge of My Health
Jun 7, 2016 • 28 min
How did a transposition of the great arteries Survivor take charge of her health and change the course of her heart disease? What are some powerful ways you can take back your health, despite what your doctor might say? What advice does this Survivor h…
Special Encore Presentation with Frank Celeskey and Alysanne Crymes
May 31, 2016 • 31 min
We are providing this special encore presentation in honor of Frank Celeskey — one of the Guests in today’s show. He was a sweet heart dad who adored his daughter. Sadly, Frank passed away on May 14, 2016. Lauren has set up a GoFundMe to help take car…
Encore Presentation of “ACHDers On Motherhood”
May 17, 2016 • 54 min
How do adult survivors of congenital heart defects feel about becoming a mother? What options are available to Survivors who wish to become mothers? What challenges do these Survivors face when it comes to pregnancy and motherhood?
Encore Presentation of “Interview with Lori M. Jones!”
May 10, 2016 • 30 min
What inspired Lori M. Jones to become an author? What nonprofit organization does Lori work with? How is she using her voice to help those in the CHD community? Tune in to hear Lori share stories and information with us.
Encore Presentation of “A Mother’s Miracle”
May 3, 2016 • 31 min
This show has been specially chosen in honor of Mother’s Day. Tune in to hear this mother’s story about the miracles she has witnessed from watching her infant son undergo surgery for transposition of the great arteries, face feeding issues and questio…
CHDs Around The Globe: Brazil
Apr 26, 2016 • 29 min
Gabriel Santana was born in São Paulo Brazil in 1988 with hypoplastic right, single ventricle, ventricular septal defect and a heart murmur. At first the doctors thought Gabriel only had a heart murmur and sent him home. After almost a year Gabriel’s c…
CHDs Around The Globe Puerto Rico
Apr 19, 2016 • 28 min
What is healthcare like in Puerto Rico? How did one mother respond when she couldn’t find resources for her son in Spanish? What advice does Marta Montero have for other Puerto Rican heart parents?
CHDs Around the Globe: Down Under!
Apr 12, 2016 • 31 min
What is healthcare like in Australia? What support group is there for children born with congenital heart defects (CHDs) in Australia? Is there hope for children born with critical congenital heart defects Down Under? Tune in to hear two heart parents’…
Defectos congénitos del corazón del mundo: Costa Rica
Apr 5, 2016 • 31 min
¿Qué es cuidado de la salud como en Costa Rica? ¿Qué piensa un cardiólogo pediatra, son algunos de los problemas de que su gente tiene en conseguir la atención médica que necesitan si nace con un defecto cardíaco?
CHDs Around The Globe: Costa Rica
Apr 5, 2016 • 29 min
What is healthcare like in Costa Rica? What does a pediatric cardiologist think are some of the problems his countrymen have in getting the healthcare they need if they’re born with a heart defect? How common are heart defects in Costa Rica? Tune in to…
CHDs Around The Globe: Italy
Mar 29, 2016 • 34 min
What is health like in Italy? How does a father, who is also a doctor, deal with having a son with a critical heart defect? What advice does the father of an adult with a heart defect have for other Italian heart parents?
CHDs Around the Globe: World Down Syndrome Day in the U.K.!
Mar 22, 2016 • 30 min
What is World Down Syndrome Day? How many people born with Down Syndrome also have a CHD? What do parents of children born with Down Syndrome need to know?
CHDs Around The Globe: Children Of The World
Mar 15, 2016 • 29 min
Twenty-nine years ago a boy was born in Pakistan with a broken heart. What happened to him? What profession is he studying now as a means of giving back? What nonprofit organization gave this boy, and his whole family, a chance to live a happy and prod…
CHDs Around The Globe: Germany
Mar 8, 2016 • 29 min
How does the mother of an angel and a rainbow baby feel about the medical care she received in Germany? What kind of care was there for babies with heart defects in Germany almost 20 years ago? What advice does this mother have for other German mothers?
CHDs Around the Globe: Kenya
Mar 1, 2016 • 31 min
What is healthcare like in Keyna? What assistance is there for children born with congenital heart defects (CHDs) in Keyna? What can Listeners do to help the CHD community in Keyna? Today’s Guest, Peter Mbogo Kamau tells us about the nonprofit organiza…
Encore Presentation of “Miracles in Cardiomyopathy”
Feb 29, 2016 • 28 min
This show features Kristi Pena, the mother of a Barth Syndrome survivor. She shares stories about the miracles she has experienced since Christopher’s birth and diagnosis.
Encore Presentation of “Adult CHD Survivors on Pregnancy & Motherhood”
Feb 28, 2016 • 54 min
How do adult survivors of congenital heart defects feel about becoming a mother? What options are available to Survivors who wish to become mothers? What challenges do these Survivors face when it comes to pregnancy and motherhood?
Adults with Congenital Heart Defects Finding Love
Feb 27, 2016 • 60 min
Is it possible to find true love even if you’re born with a broken heart? What kind of people are willing to marry a person with a congenital heart defect? What advice do adults with CHDs have for others looking for love?
Encore Presentation “Forever Young: Cognitive Impairments & CHD”
Feb 26, 2016 • 32 min
What happens when a child born with a heart defect (CHD) also has mental impairments? What problems do children with cognitive impairments have? What advice does a mom dealing with a child with both a CHD and cognitive impairment have for others?
Encore Presentation “Hope for Babies Diagnosed In Utero
Feb 25, 2016 • 32 min
What should parents do if they’re told their unborn children will be born with a heart defect? What professionals can help pregnant women who have babies with heart defects? Is there hope for babies born with broken hearts?
Encore Presentation of “ACHDers On The Hill”
Feb 24, 2016 • 35 min
What laws are needed to help members of the CHD community? How can individuals make a difference when it comes to lobbying? Why do Adults with Congenital Heart Defects (ACHDers) need to be involved in fighting for their rights? Guests and Adult Congen…
CHDs Around The Globe: Israel
Feb 23, 2016 • 30 min
What is healthcare like in Israel? What assistance is there for children born with congenital heart defects (CHDs) in Israel? What educational services are available to Israeli children who have congenital heart defects and autism and epilepsy? Tune in…
School Issues: Bullying, Parent Advocacy & Making Schools Safe for CHD Survivors
Feb 22, 2016 • 55 min
Tune in to hear a CHD Adult Survivor, a parent and a special education teacher discuss what it means to send a child with a CHD to public school. What laws are there to help our CHD Survivors? How can parents work to make schools safer?
Learning Disabilities & Possible Brain Injury in Children with CCHDs
Feb 21, 2016 • 53 min
How does having open-heart surgery affect the brain in infants and children? Is it possible when heart grow malformed, the brain can also have problems? What can parents do to help their children with CHDs if they have learning disabilities?
Encore Presentation of “Siblings in the CHD Community”
Feb 20, 2016 • 48 min
What can we learn from siblings of CHD survivors? How can we help siblings and how important is it for them to be there when a brother or sister is in the hospital? Tune in to find out!
Family Caregivers Unite! Presents “Baby Hearts”
Feb 19, 2016 • 57 min
How does being a caregiver for a baby with a congenital heart defect affect mothers? What challenges do mothers face when their babies have a heart defect? What do these mothers wish others knew about caregiving for a child with a heart defect?
Encore Presentation of “Chiropractic Care for CHD Survivors”
Feb 18, 2016 • 57 min
So many times traditional medicine doesn’t quite do everything necessary to help our CHD survivors have the quality of life we want them to have. Sometimes we have to go in another direction. A chiropractor and mother share their experience with us today.
Encore Presentation “Miracles of Adoption”
Feb 17, 2016 • 30 min
What miracles are involved with adopting a child with a congenital heart defect? How does adoption benefit everyone involved? What advice does Becky have to share with others regarding adoption?
CHDs Around the Globe: Pakistan
Feb 16, 2016 • 29 min
What is healthcare like in Pakistan? What assistance is there for children born with congenital heart defects (CHDs) in Pakistan? What can Listeners do to help the CHD community in Pakistan?
Encore Presentation of “Saving A Life From SCD”
Feb 15, 2016 • 32 min
What kills 1000 people a day or one person every two minutes? What kills more people annually than breast cancer, lung cancer and HIV/AIDs combined? How can lives be saved from sudden cardiac death?
Encore Presentation of “Organ Donation and Transplantation”
Feb 14, 2016 • 50 min
What kind of heart defects result in needing a heart transplant? How do survivors and parents of survivors feel about heart transplants? What is one wish many heart parents hold in their hearts when thinking their children may need another transplant?
Encore Presentation of “PTSD, Anxiety and Survivor’s Guilt”
Feb 13, 2016 • 49 min
Nobody wants to talk about the bad feelings a person can have from dealing with a CHD but that doesn’t mean they don’t exist. How are members of the CHD community affected by post-traumatic stress disorder, anxiety and survivor’s guilt? Tune in to find…
Encore Presentation of “A Twin Miracle”
Feb 12, 2016 • 30 min
How does a “natural” mother who wanted a home birth deal with the disappointment of being told she would have to deliver in a hospital? How does that same mother feel after her son is diagnosed with a potential life-threatening birth defect?
Encore Presentation of “Surviving a Long Hospital Stay”
Feb 11, 2016 • 61 min
How does a teenager with a congenital heart defect survive a long hospital stay? What can parents of children with CHDs do to help their children when they have a long hospital stay? What do Child Life Specialists have to say about long hospital stays?
Encore Presentation “Unlocking the Mysteries of CHDs”
Feb 10, 2016 • 28 min
What causes congenital heart defects? How has the field of genetics evolved? What advancements have been made in genetics regarding congenital heart defects?
CHDs Around the Globe - Novick Cardiac Alliance
Feb 9, 2016 • 30 min
How does a CHD Survivor give back to the heart community? What is the Novick Cardiac Alliance? What is Roslyn’s favorite memory of working with the Novick Cardiac Alliance? Tune in to hear the answer to these questions and more!
Encore Presentation of “The Miracle of a New Heart”
Feb 8, 2016 • 30 min
Today’s show will feature two gentlemen who have suffered from heart failure. Tune in to hear what miracles they’ve experienced and what advice they have for others.
Encore Presentation of “Surviving the Teenage Years with a CHD”
Feb 7, 2016 • 52 min
How difficult is it to go through the teenage years when you have a congenital heart defect? How does having had open-heart surgery set a person apart from their peers? What advice do these Guests have for other teens with congenital heart defects?
Encore Presentation of Sports and Extra-Curricular Activities for CHD Survivors
Feb 6, 2016 • 52 min
Are children with critical congenital hearts able to play sports? What kinds of extra-curricular activities interest heart defect survivors? What can parents do to help their children born with broken heart do to help them enjoy sports?
Encore Presentation with Bret Baier
Feb 5, 2016 • 29 min
What heart defect did Fox news anchor Bret Baier’s baby have? How did Bret Baier and his wife Amy react to having a child with a critical congenital heart defect? Tune in to hear the answer to these questions and more!
Encore Presentation of “Losing a Child to a CHD”
Feb 3, 2016 • 61 min
How does a parent survive losing a child to a congenital heart defect? What keeps parents living even when they feel their own hearts will break? Tune in to hear 3 mothers’ tales of survival after loss.
Congenital Heart Defects Around the Globe: Canada
Feb 2, 2016 • 32 min
How does a long-time Canadian Survivor of congenital heart defects negotiate the medical system? What is healthcare like in Canada? How does Carolyn deal with her diagnoses of Eisenmenger Syndrome, truncus arteriosus and heart block?
Encore Presentation of “You Are Not Alone”
Feb 1, 2016 • 51 min
What is the number one birth defect? How have grandparents, survivors and parents felt about being part of the congenital heart defect community? Tune in to hear the answer to these questions and more!
Seizing the Day with Jessica Cowin!
Jan 26, 2016 • 28 min
How does a 32-year old HLHS Survivor seize the day? Why would such a young woman write her memoirs? What advice does this multiple-transplant survivor have for others? Tune in to hear the answer to these questions and more!
Seizing the Day with Jackie Renfrow!
Jan 19, 2016 • 30 min
How does a wife, mother and grandmother seize the day when her family has a terrible secret? What secret was in the genes of her, her children and mother that could cause sudden death? How does Jackie help her granddaughters to seize the day?
Seizing the Day with Maribeth Poole!
Jan 12, 2016 • 29 min
How does a 30-year-old HLHS Survivor “seize the day”? How does she seize the day with her husband? What advice does she have for parents of HLHS babies and HLHS Survivors? Tune in to hear Maribeth Poole share this information and more!
Seizing the Day with Jessica Gutierrez-Rodriguez!
Jan 5, 2016 • 29 min
How does the mother of a daughter with HRHS seize the day? How does her job also help her to seize the day? What advice does she have for other parents?
Seizing the Day with Dr. Wilson Lam!
Dec 29, 2015 • 31 min
How does a cardiologist for adults born with congenital heart defects seize the day? What obstacles has he encountered in working with adults with congenital heart defects? What’s new in the field of pediatric cardiology regarding anti-arrhythmia drugs?
Seizing the Day with Rachael Wright!
Dec 22, 2015 • 29 min
What is HeartGift? How do doctors in the United States save children in countries that don’t have hospitals that perform life-saving open-heart surgery? Why is Rachael Wright involved with HeartGift?
Seizing the Day with Shirley Craig!
Dec 15, 2015 • 31 min
How does an Eisenmenger Survivor seize the day? How does receiving a heart/double-lung transplant affect your philosophy of life? What does this 65-year old congenital heart defect Survivor have to teach us?
Seizing the Day with Tracy Livecchi!
Dec 8, 2015 • 31 min
Growing up with a congenital heart defect for many children means more visits to the hospital and clinic than for their heart healthy peers. Today’s Guest was born with transposition of the great arteries and she has used her experiences and her educat…
Seizing the Day with Katina Robalino!
Dec 1, 2015 • 31 min
Seizing the day, or Carpe Diem, can be a difficult concept for people in the throes of extreme distress and few experiences are as distressing as having to hand over a child for open-heart surgery. Now imagine doing it twice. Now imagine one of the sur…
Seizing the Day with Tracey Grasty!
Nov 24, 2015 • 30 min
How does a 49-year-old HRHS Survivor “seize the day”? What makes Tracey Grasty exceptional? How does being a nurse affect her philosophy of life? Tune in to discover the answer to those questions and more!
Seizing the Day with Myles Schweitzer!
Nov 17, 2015 • 30 min
How does a 25-year-old HLHS Survivor “seize the day”? What makes Myles Schweitzer exceptional? How does being a musician affect his philosophy of life? Tune in to discover the answer to those questions and more!
Seizing the Day with Lauren Bednarz and Suzanne Meredith!
Nov 10, 2015 • 30 min
How do a mother and daughter duo seize the day when they’re dealt the blow of a chronic illness? How does their perspective change over time? What advice do they have for others?
Seizing the Day with Jim Larson!
Nov 3, 2015 • 29 min
Season Six of “Heart to Heart with Anna” is all about Carpe Diem — Seizing the Day. In this episode we’ll learn about a remarkable congenital heart defect (CHD) Survivor who was born in the 1950s. Being born with tetralogy of Fallot in the 1950s could…
Ruling the World…One Cookie at a Time
Sep 1, 2015 • 27 min
Today’s episode of Heart to Heart with Anna shows how a heart mom - inspired by her daughter’s determination - has begun a successful small business. The guest for this exciting episode is Jessie Wimmer, who is a heart mom from Charlotte, NC. She has…
Compassion Fatigue: Silent Enemy, Soul Sickness
Aug 25, 2015 • 27 min
Have you ever felt like things are just getting out of hand or getting away from you? Is the stress of being a caregiver affecting the way you relate to others? On today’s episode we will discuss the topic of Compassion Fatigue, which is present in m…
This is NOT the Trip I Planned For!
Aug 18, 2015 • 26 min
Chris Perez is a Heart Dad from North Carolina. His son Nolan was born in 2012 with Hypoplastic Left Heart Syndrome. For almost 2 years he’s written a blog called Half Heart. Whole Life: an HLHS Dad’s blog, where he lays out the life of a Heart Dad w…
The Miracle of a Stranger’s Gift
Aug 11, 2015 • 29 min
This episode of “Heart to Heart with Anna” is the final episode of Season 5: Miracles DO Happen! We started Season Five with a miracle story about a woman who found out after she gave birth that her son had a critical congenital heart defect and who…
The Miracle of Giving Back
Aug 4, 2015 • 30 min
Those who have been through the trauma of having open-heart surgeries and dealing with all of the situations that accompany them have many choices. They can choose to be positive and to see the bright side, even when things get difficult or they can ch…
A Mother’s Miracle
Jul 28, 2015 • 30 min
Many mothers believe their babies are miracles, but few know that to be a fact like mothers of children born with broken hearts. When mothers are told their unborn or newborn babies have something wrong with their hearts, the news is devastating. When …
The Miracle of a New Heart
Jul 21, 2015 • 29 min
Some people are born with broken hearts that seem to function adequately for years before they start to decline and become unable to sufficiently support life. With the invention of pacemakers, ventricular assist devices, and defibrillators, it seems t…
A Modern Medical Miracle
Jul 14, 2015 • 31 min
Miracles seem to be all around us, but some miracles are thanks to the great strides made in the field of pediatric cardiology. What kind of advances have been made over the years? What are some techniques being used that can save untold numbers of liv…
A Cardiomyopathy Miracle
Jul 7, 2015 • 27 min
What happens when you’re told your baby’s only hope for survival is a heart transplant and that even with that there were no guarantees? When parents rely on faith, instead of on medical “facts,” can they possibly be granted a miracle? Tune in to hear …
The Miracle of an Ordinary Life
Jun 30, 2015 • 30 min
When parents are told their children will be born with a heart defect, they often wonder what kind of life their children will have. Will they constantly be hospitalized? Will they have to endure one surgery after another? Will they be able to run and …
The Miracle of Growing Up with a CHD
Jun 23, 2015 • 31 min
When children survived the early heart surgeries of the 1940s, ‘50s and 60s, it was often considered miraculous. It is because of amazing doctors Dr. Robert Gross, Dr. Helen Taussig, Dr. Alfred Blalock, Dr. William Rashkind (and far too many others for…
A Miracle in Pakistan
Jun 16, 2015 • 28 min
Season Five of “Heart to Heart with Anna” has focused on miracles that happen in the congenital heart defect community. The first 4 shows were all about miracles that took place in the United States of America. Today’s show will feature a very special …
Mary Beth Miller’s Miracle Story
Jun 9, 2015 • 30 min
Sometimes a person is with us for only a short period of time and yet that person leaves a legacy that touches others forever. That is the case with little Mary Beth Miller. Tune in to her her mother and father talk about her life, the miracles they wi…
Miracle of a CCHD Baby’s Survival
Jun 2, 2015 • 27 min
What happens when you are a nurse and the father of a child who is perfectly healthy when all of a sudden you are the father of a baby with a chronic illness but nobody believes you when you say something is wrong? What lessons can be learned from a si…
The Miracles of Adoption
May 26, 2015 • 29 min
There are hundreds of thousands of children awaiting adoption around the world. In the United States alone, according to the Adopt America Network, there are 130,000 children in the U.S. foster care system waiting to be adopted. Children are awaiting a…
A Twin Miracle!
May 19, 2015 • 28 min
Having twins seems like a miracle all by itself, but our Guest, Kathy Kolodzinski has a remarkable story to share. Listen to her as she shares the miracle of birth, how her son’s undiagnosed congenital heart defect could have taken his life shortly aft…
Lars Andrews on Cardiac Athletes™
Apr 21, 2015 • 31 min
Cardiac athletes are all around us. There are athletes who develop heart problems or who discover, after they have been athletes for a while, that there heart has some imperfections that may require surgery and there are people who were born with heart…
How CPS Almost Destroyed a Heart Family
Apr 14, 2015 • 31 min
Child Protective Services is supposed to help children who may be neglected or abused but what kind of damage can they exact when they interfere with a family who has a child with a complicated medical history — including a congenital heart defect? H…
In Utero Surgery for Babies with HLHS
Apr 7, 2015 • 28 min
Now, more than ever before, parents are finding out in utero if their baby will be born with some kind of congenital birth defect. One potentially fatal congenital heart defect is hypoplastic left heart syndrome (or HLHS). According to Texas Children’s…
Twins in the CHD Community
Mar 31, 2015 • 27 min
Having twins is a very special occurrence since it doesn’t happen all that often. What happens when you have twins but one, or both of them, have a congenital heart defect? How does that affect other children in the same family? Will you be able to bre…
Unlocking the Mysteries of CHDs
Mar 24, 2015 • 28 min
Dr. Woody Benson has been practicing in the field of pediatric cardiology for 43 years. He is a pioneer in the field of pediatric electrocardiology and for the last 20 years he has been training or researching the molecular genetics of pediatric heart …
Living with Congenital Heart Defects
Mar 17, 2015 • 29 min
Ted and Mary Kay Klein will talk about how their daughter, Karen Klein McNulty, inspired them to become involved in the CHD community and how Karen had the insight to develop an organization specifically for adults with congenital heart defects. Tune i…
Wild Things! When ACHDers Rebel
Mar 10, 2015 • 33 min
Being born with the most common birth defect still means you’re not like everyone else. Going through the teen and young adult years is difficult for everyone, but it’s even more difficult for survivors of congenital heart defects. Unlike their peers, …
ECMO Success for Babies with CHDs
Mar 3, 2015 • 32 min
Sometimes our littlest heart heroes need extraordinary help in order to survive. One of the most extraordinary machines used to save our babies born with congenital heart defects is known as ECMO which stands for extracorporeal membrane oxygenation. Th…
Kids w/CHDs Falling Between the Cracks
Feb 24, 2015 • 30 min
It is not uncommon for children who have undergone open-heart surgery to have some developmental delays. Are these delays severe enough for them to qualify for special services? What happens when our children with congenital heart defects have developm…
Hope for Heart Babies Diagnosed In Utero
Feb 17, 2015 • 30 min
What happens when you are pregnant and go in for a routine ultrasound only to discover your baby has a heart defect? How do you handle the news? What options are you given? Even though congenital heart defects are the number one birth defect, there are…
Congenital Heart Defect Awareness 2015!
Feb 10, 2015 • 28 min
Congenital heart defects (or CHDs) are the number one birth defect and yet, this is one of the best-kept secrets! How do members of the CHD community change all of that? Our Guests today include a young woman born with a critical congenital heart defec…
Silent Cries: Moving from Philanthropist
Feb 3, 2015 • 28 min
Congenital heart defects are the number one birth defect yet there are few movies depicting members of the congenital heart defect (CHD) community or CHD themes. “Silent Cries” is a movie written by the father of a child with hypoplastic left heart syn…
Interviewing the Inventor of MyHeartApp
Jan 27, 2015 • 28 min
What happens when you’re born with a congenital heart defect but have the opportunity to lead a normal, healthy life until you reach adulthood but then your whole world gets upended when your heart becomes the focus of your existence? How can a pers…
Expressions from the Heart on HeartWire
Jan 6, 2015 • 30 min
When a person is born with a broken heart, parents must face a multitude of decisions — many life-threatening and terrifying. As children age, they themselves become aware of their heart problems and face their own mortality. Many of us in the heart d…
Saving a Life from Sudden Cardiac Death
Dec 30, 2014 • 30 min
What kills 1000 people a day or one person every two minutes? What kills more people annually than breast cancer, lung cancer and HIV/AIDs combined? What is one event that kills most of the people who suffer from it, but who could possibly be saved? Th…
Saving a Life with Infant CPR
Dec 23, 2014 • 27 min
Infant cardiopulmonary resuscitation (CPR) is not usually done for the same reasons that adults have CPR performed on them. Whereas adult CPR is very commonly performed for sudden cardiac arrest, infant CPR may need to be performed in a number of situa…
Living with cc-TGA (heart defect)
Dec 16, 2014 • 29 min
The most common cyanotic congenital heart defect that presents in the first month after birth is transposition of the great arteries (TGA) — dextro-TGA (d-TGA) and levo-TGA (l-TGA) or congenitally corrected TGA (also known as cc-TGA). Because cc-TG…
Forever Young: Brain Injury & CHDs
Dec 9, 2014 • 31 min
Children who are born with complex congenital heart defects and require open-heart surgery in the first year of life are more at risk for having brain injuries which will result in problems learning speech, language and academic skills. Who is most at …
Surviving Holidays After Losing a Child
Dec 2, 2014 • 28 min
Congenital heart defects claim far too many Heart Warriors’ lives. It is a leading cause of death amongst newborns and consequently, there are a lot of bereaved parents suffering the loss of their precious babies. How does a parent survive the loss of …
Parenting Changes: When CHD Kids Grow Up
Nov 25, 2014 • 30 min
So many of us parents were told that our children wouldn’t survive to adulthood decades ago. It’s a different world now, with most children born with congenital heart defects having better surgeries and better outcomes than ever before! But what about …
Teen and Young Adults w/CHDs Rebellion
Nov 18, 2014 • 28 min
It seems that most teens and young adults go through a normal period of rebellion. Some only grow out their hair (or get it cut in some trendy fashion), others get tattoos or piercings. It’s common for young adults and teens to experiment with alcohol,…
Natural Medicine for CHD Survivors (Remastered)
Nov 11, 2014 • 27 min
The founder of Maty’s Healthy Products, Carolyn Harrington, discusses with Anna why she started her company, how it has helped people with congenital heart defects and some simple ways everyone can improve his/her health.
Adults with Heart Defects on “The Hill”
Nov 4, 2014 • 34 min
How can members of the congenital heart defect (CHD) community lobby for change in today’s laws in the United States? One thing they can do is to come together as a unified group to speak to their lawmakers and request, in a collective voice, for chang…
Living with Eisenmenger’s Syndrome
Oct 28, 2014 • 28 min
Have you ever wondered what Eisenmenger’s Syndrome is? Who gets it? What are the symptoms? How does it affect a person’s body from childhood to adulthood? What changes occur with the aging survivor? Carolyn Robinson, a long-time Eisenmenger Syndrome S…
Empowerment Thru Helping Others
Oct 21, 2014 • 30 min
As the parent of a child with a life-threatening heart defect, it’s easy to feel overwhelmed by the new “heart world” the family is immediately part of. On this show two mothers who have children with critical congenital heart defects (CHDs) will discu…
An Interview with Author Lori M. Jones!
Oct 14, 2014 • 29 min
One of the most helpless feelings in the world is being told your child has a congenital heart defect, will need surgery and will have a lifetime of follow-up appointments and untold future procedures. Some parents have great difficulty dealing with th…
An Interview with News Anchor Bret Baier
Sep 30, 2014 • 25 min
What author and public figure has had a child born with a congenital heart defect? What efforts has this person taken to spread awareness of congenital heart defects? Our special guest, Bret Baier, is working hard to promote his book about congenital h…